Skin sensitivity Hi Everyone! Sooo i have SLE, as well as a multitude of other autoimmune diseases (I’m basically collecting them like Pokémon now). But, i recently have had intense and painful...reactions9repliesSymptoms
New Brand of HydroxychloroquineNew brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my older hydroxychloroquine. Old pill round marked GG260 new...reactions15repliesTreatment
Brain fog and fatigueHi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...reactions9replies
Lupus Awareness Have you learned anything new about lupus that you didn’t know this lupus awareness month? Is there anything you have learned on your lupus journey that has surprised you?...reactions16repliesAwareness
Sinius problem, hearing problems, feeling awful.I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a barrel. Feel awful, weak in the knees....reactions11repliesDiagnosisSun SensitivitySleep
Sleep HabitsHow well do you sleep at night? What are your tricks to help you sleep better?...reactions479repliesSleep
How do you handle the heat when wearing so much clothes?Clothing choices Cooling devices Tips on how to deal with heat and sun....reactions4repliesSun Sensitivity
My diagnosis 24 years agoMy diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high school. My government teacher saw I was fatigued...reactions4repliesCopingDiagnosis