Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Featured

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active today

Chest Pain Anyone?

I sometimes have chest pain around my heart that feels like a stabbing pain, lasting only a few seconds, and happens a few times an hour and for several hours...

Active today

When to go to the ER....

I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...

Active today

Lupus

Just a question for anyone who has sle lupus and family members that have had been diagnosed with asbestos cancer and the correlation between these diseases I was reading about...

Active today

Keeping personal journal to learn about flares

I was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...

Active today

How do people with autoimmune disorders survive from day to day if they are unable to work and are denied social security disability?

I have applied and been denied 3 times. The third time I had an attorney who handled it. I have lupus, Hashimoto's disease, and RA. I am unable to stand...

Active yesterday

Invisible Disability Discrimination

For those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing you are disabled because when they see you...

Active yesterday

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...

Active yesterday

Coping

What’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...

Active yesterday

Nobody Gets It

Sometimes I feel like a little old lady or a broken record when I hear myself saying my head hurts, or my back hurts, or my elbow hurts, or whatever...

Active 3 days ago

Things I found that help

Since I suffer with both Lupus & Sjogrens, I found that taking the supplement glutathione and Lactoferrin help. In addition, an infrared sauna....

Categories

Select a category to find topics that interest you.