FeaturedActive todayIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments224 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active todayTriggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...Reactions0reactionsComments106 repliesButterfly RashFatigueSun Sensitivity
Active todayChest Tightness from Sun ExposureAnyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...Reactions0reactionsComments30 repliesAnxietyFatigueSun Sensitivity
Active 3 days agoHip PainDoes anyone have trouble with hips aching?...Reactions0reactionsComments54 repliesSymptoms
Active 3 days agoCan't get out of this flareDoes anyone else have any issues with getting out of a flare. I was diagnosed a yr ago with Lupus but have been in denial. I went to Fl to...Reactions0reactionsComments13 replies
Active 3 days agoDiagnosisI am newly diving in to the possible diagnosis of Lupus. I have MANY correlating and debilitating symptoms. My pcp has ordered lab work and it is pending. I have...Reactions0reactionsComments2 replies
Active 3 days agoNew member "Thank you" for having me 🤗Hello Members, I was diagnosed with SLE & SCLE in 2008 with also Secondary Sjogren's syndrome & Raynaud's phenomenon. Having a past health history of other health conditions & over...Reactions0reactionsComments0 replies
Active 4 days agoWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...Reactions0reactionsComments160 repliesAwareness
Active 6 days agoWhat do you do?Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...Reactions0reactionsComments18 repliesCopingSleep
Active 7 days agoBrain fog and fatigueHi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...Reactions0reactionsComments9 replies