Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active today

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active yesterday

Rituximab Infusions

I have had SLE since I was 30. I am now 66. My flares are becoming more frequent and so I am...

Active yesterday

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

Active yesterday

Flares, Dizziness, Sun

I have been diagnosed with 5 autoimmune disorders, with test and 2 medical specialist, for 14 years. I have SLE Lupus involving...

Active 3 days ago

Do you wear a medical alert bracelet?

Do you wear a medical alert bracelet for lupus or any other comorbid conditions? Has it ever come in handy or helped...

Active 5 days ago

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here...

Active 6 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 6 days ago

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors...

I finally am diagnosed but it took 35 years

I was pretty sure for 20 years I had an autoimmune disease, but my ANA was negative and my doctor refused to...

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to...

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