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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

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Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a...

Active today

Invisible Disability Discrimination

For those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing...

Active today

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I...

Active 3 days ago

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Active 5 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 6 days ago

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

Active 6 days ago

Family Support

How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus...

Active 7 days ago

Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist...

Active 8 days ago

Infusion Treatment

Today I had Benylista injection w a contrast,protects me from nausea But I know in my heart it went well Just want...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Pain after rest

When I arise in the mornings, usually the only thing that hurts is my neck. If I lie down on the couch...

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