FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments210 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active todayRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions0reactionsComments88 repliesCopingJoint PainSymptoms
Active todayShame and GuiltDo you have shame or guilt when needing to rest?...Reactions0reactionsComments143 repliesCoping
Active todayIs this a malar rash?Hello! I was tested for lupus 8 years ago as I had a series of symptoms that were growing concerning, and my mother has lupus. Tests proved negative. 3 years...Reactions0reactionsComments6 replies
Active todayVivid, nightly, disturbing dreamsI have had Lupus all my adult life, now aged 87, was put in Depression bóx' in my 30's and was not correctly diagnosed until i was in my 60's...Reactions0reactionsComments1 repliesSleep
Active todayIs there a connection between narcolepsy and lupus?I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so tired and that if I sit or lay...Reactions0reactionsComments3 repliesFatigue
Active 3 days agoUndiagnosed and meeting with primary care. Feeling nervous.Hello. I have had odd symptoms on and off over the years but recently I put them all together and now wonder if it could be lupus. I'm hitting many...Reactions0reactionsComments7 repliesSymptomsDiagnosisJoint Pain
Active 3 days agoWhen to go to the ER.... I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...Reactions0reactionsComments26 repliesSymptomsDiagnosisTreatment
Active 3 days agoFeeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...Reactions0reactionsComments153 replies
Active 4 days agoProblem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...Reactions0reactionsComments213 repliesTreatment
Active 4 days agoSay it to yourselfIf you could tell your pre-diagnosis self something that can help you today, what would it be?...Reactions0reactionsComments0 repliesCopingTips & Advice