FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments223 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active todayCan't get out of this flareDoes anyone else have any issues with getting out of a flare. I was diagnosed a yr ago with Lupus but have been in denial. I went to Fl to...Reactions0reactionsComments11 replies
Active todayWhat do you do?Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...Reactions0reactionsComments16 repliesCopingSleep
Active todayWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...Reactions0reactionsComments158 repliesAwareness
Active todayBrain fog and fatigueHi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...Reactions0reactionsComments9 replies
Active todayBENLYSTAI am wondering if there's anyone on the medication BENLYSTA? And what side effects you experiencing. My son's doctor is recommending it take it. When I read, side effect being...Reactions0reactionsComments1 replies
Active yesterdayHip PainDoes anyone have trouble with hips aching?...Reactions0reactionsComments54 repliesSymptoms
Active 3 days agoRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions0reactionsComments107 repliesCopingJoint PainSymptoms
Active 3 days agoFamily SupportHow do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without...Reactions0reactionsComments72 repliesFriends & Family
Active 3 days agoNo insurance no doctor supportMy daughter is dealing with lupus and has no insurance and doctors over the years have pretty much ignored her feelings, can't afford treatment, can only work ocassionally, afraid meds...Reactions0reactionsComments5 repliesDiagnosisCaregiving
Active 3 days agoSpring TimeHow is everyone who is coming into spring handling the pollen? Has allergies been bothering you? ~Racquel~ lupus.net team member...Reactions0reactionsComments8 repliesSymptoms