FeaturedActive yesterdayIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments218 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active yesterdayWhat do you do?Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...Reactions0reactionsComments14 repliesCopingSleep
Active yesterdayBrain fog and low energyHi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...Reactions0reactionsComments29 repliesFatigueJoint PainSymptoms
Active 3 days agoHello!Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...Reactions0reactionsComments4 repliesAnxietyBrain FogCoping
Active 3 days agoFeeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...Reactions0reactionsComments160 replies
Active 3 days agoProblem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...Reactions0reactionsComments214 repliesTreatment
Active 5 days ago3 Questions - Do You Relate?"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...Reactions0reactionsComments8 repliesSleepMental HealthBrain Fog
Active 5 days agoTriggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...Reactions0reactionsComments104 repliesButterfly RashFatigueSun Sensitivity
Active 5 days agoSay it to yourselfIf you could tell your pre-diagnosis self something that can help you today, what would it be?...Reactions0reactionsComments3 repliesCopingTips & Advice
Active 5 days agoRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions0reactionsComments95 repliesCopingJoint PainSymptoms