FeaturedLupus and Cutaneous MastocytosisHi I have had SLE since I was 17yrs old. I am now 67 and a year ago started having severe hives. After having allergy skin tests coming back negative...Reactions 0 reactions Comments1 repliesSymptomsTips & Advice
FeaturedHow to Deal with Prednisone Side Effects?Hi everyone, I've been diagnosed with lupus for 8 months now. At first, no one warned me about the side effects either related to lupus or its medicines. Besides the...Reactions 0 reactions Comments2 repliesSide Effects
Active 3 days agoSourcing QuinacrineBefore it became unavailable I was using quinacrine to treat my lupus very successfully however since it's become unavailable in the USA I've had to switch to azathioprine which has...Reactions 0 reactions Comments0 replies
Face Symptoms and Steroid Side-effectsThis post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...Reactions 0 reactions Comments2 repliesSide EffectsSymptomsTreatment
Advocates, Ya'll OK? I not only have a heart for our community, but there's a special place in my heart for fellow advocates. We're not only patients ourselves, but I feel there's an...Reactions 0 reactions Comments4 repliesCopingAwareness
Seizures and Lupus Do I have seizures or something else related to Lupus? I’m 20 and I was diagnosed almost a year ago with lupus, but I can’t figure out if these episodes...Reactions 0 reactions Comments1 repliesTips & Advice
Calling all Lupus Warrior Moms! Let's discuss motherhood! Being a lupus warrior is hard, being a lupus warrior mom is super tough! Let's come together and share our joys, challenges, frustrations, whatever to help one another. If you...Reactions 0 reactions Comments11 repliesAwarenessFriends & Family
Exogen testI have been treated with plaquinil for 5 years now. About a year ago I went for a second opinion on my lupus diagnosis. She got the exogen results and...Reactions 0 reactions Comments10 repliesDiagnosis
Struggling with a diagnosis My names Rachel, I'm 35. I have been experiencing some symptoms of lupus. I have the classic butterfly rash along with heat and sun sensitivity. I'm 8 months pregnant and...Reactions 0 reactions Comments2 repliesButterfly RashBrain FogCoping
My horrible journey with LupusHello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until I finally able to get a proper diagnosis and a proper test...Reactions 0 reactions Comments4 repliesFatigueFeverDiagnosis
