FeaturedActive 2 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...reactions243repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a...reactions6repliesCaregiving
Active todayInfusion Treatment Today I had Benylista injection w a contrast,protects me from nausea But I know in my heart it went well Just want...reactions1reply
Active todayInvisible Disability DiscriminationFor those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing...reactions113replies
Active todayRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...reactions158repliesCopingJoint PainSymptoms
Active todayShame and GuiltDo you have shame or guilt when needing to rest?...reactions230repliesCoping
Active todayPain after restWhen I arise in the mornings, usually the only thing that hurts is my neck. If I lie down on the couch...reactionsrepliesJoint Pain
Active todayHoarse voiceHi, hope everyone is doing well. Just have a question. Dies anyone's voice start to get hoarse after talking for a while?...reactions11replies
Active yesterdayWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...reactions219repliesAwareness
Active 2 days agoTriggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...reactions155repliesButterfly RashFatigueSun Sensitivity
Active 3 days agoAfter Flare Self-CareIt's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after...reactions208repliesCopingTips & Advice