FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments78 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions 0 reactions Comments2 repliesCaregiving
Active todayLupus or hivesHi I have recently seen a rheumatologist for the first time after symptoms that I thought may be lupus. I keep getting out on antihistamines and steroids. The lumps, rash...Reactions 0 reactions Comments2 repliesSymptoms
Active todayHas anyone done the Benlysta infusions? I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...Reactions 0 reactions Comments1 repliesTreatmentSide EffectsSleep
Active todayAnyone have lower back pain NOT lupus nephritis?Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and positive Lupus anticoagulant and Anticardiolipin. I did well...Reactions 0 reactions Comments19 repliesSymptomsTreatmentHealthcare TeamSleep
Active todayDiagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us. If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...Reactions 0 reactions Comments2 repliesDiagnosisAwareness
Active 4 days agoStomach PainI have been having stomach pains for the last 2 days. Is anyone else experiencing this. I was diagnosed with Lupus last week and was wondering could the stomach pain...Reactions 0 reactions Comments3 repliesSymptoms
Active 4 days agoHave you ever been to Azia, South-America or Africa before you got lupus?Dear all, Before you got lupus, have you ever in your life been to Azia, Africa or South-America? For holiday or did you live there? And/ or has a close...Reactions 0 reactions Comments0 repliesSymptomsResearch & Clinical TrialsTravel
Active 5 days agoMy Wife's Lupus & DepressionHello, My wife was diagnosed with lupus and neural Sjögren's about eight years ago. She's been getting monthly Benlysta infusions for the past five years. They have helped her flare...Reactions 0 reactions Comments1 repliesDepressionFriends & FamilyMental Health
Active 5 days agoNo appetite I feel like food has become a source of anxiety. I don’t know how it will make me feel. I have no desire to eat. I eat a little but...Reactions 0 reactions Comments4 repliesAnxiety
Active 5 days agoFavorite SongsWhat are two of your favorite songs that motivate you...Reactions 0 reactions Comments3 repliesCoping
Active 5 days agoSoundbathsHas anyone tried soundbaths to help with chronic pain? ~Racquel~ lupus.net team member...Reactions 0 reactions Comments2 repliesTreatmentCoping
