FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments195 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active todayInvisible Disability DiscriminationFor those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing you are disabled because when they see you...Reactions0reactionsComments60 replies
Active todayWhen to go to the ER.... I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...Reactions0reactionsComments21 repliesSymptomsDiagnosisTreatment
Active todayHow do people with autoimmune disorders survive from day to day if they are unable to work and are denied social security disability?I have applied and been denied 3 times. The third time I had an attorney who handled it. I have lupus, Hashimoto's disease, and RA. I am unable to stand...Reactions0reactionsComments3 repliesTips & Advice
Active yesterdayLupus Just a question for anyone who has sle lupus and family members that have had been diagnosed with asbestos cancer and the correlation between these diseases I was reading about...Reactions0reactionsComments1 replies
Active 3 days agoChest Pain Anyone? I sometimes have chest pain around my heart that feels like a stabbing pain, lasting only a few seconds, and happens a few times an hour and for several hours...Reactions0reactionsComments2 replies
Active 4 days agoKeeping personal journal to learn about flaresI was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...Reactions0reactionsComments3 repliesCopingTreatment
Active 4 days agoFeeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...Reactions0reactionsComments124 replies
Active 4 days agoCopingWhat’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...Reactions0reactionsComments3 repliesCoping
Active 4 days agoNobody Gets ItSometimes I feel like a little old lady or a broken record when I hear myself saying my head hurts, or my back hurts, or my elbow hurts, or whatever...Reactions0reactionsComments1 repliesBrain Fog
Active 5 days agoThings I found that helpSince I suffer with both Lupus & Sjogrens, I found that taking the supplement glutathione and Lactoferrin help. In addition, an infrared sauna....Reactions0reactionsComments4 repliesTreatment