FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments27 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions 0 reactions Comments2 repliesCaregiving
Active 3 days agoUndiagnosed, SLE?Hello all, My wife's Nuclear Antibody Titre is 1:320 (Homogenous pattern) and her follow-up tests showed the following: dsDNA Antibody : 16 IU/mL B2 GlYCOPROTEIN 1 lgG ANTIBODY: >115.0 u/ml...Reactions 0 reactions Comments5 repliesDiagnosis
Active 3 days agoMedication Denied Just looking for some advice. In addition to lupus, I’ve also been diagnosed with congested heart failure, hypotrophic cardiomyopathy. Afib, and pulmonary hypertension. For years I was on plaquenil ...Reactions 0 reactions Comments2 repliesCaregivingTreatmentCoping
Active 4 days agoLupus Awareness Have you learned anything new about lupus that you didn’t know this lupus awareness month...Reactions 0 reactions Comments2 repliesAwareness
Active 4 days agoRashSo does anyone else get rashes on their arms and hand? I walked around a craft show for an hour and the next day had a rash on my whole...Reactions 0 reactions Comments4 repliesSymptomsButterfly Rash
Active 5 days agoTrush vs Lichen PlanusI've been diagnosed years ago with severe candida. I've also had patches that remind me of what I've read about lichen planus.. I started researching and discovered both pertaining to...Reactions 0 reactions Comments2 repliesSymptomsSores
Active 6 days agoConfused and undiagnosed I've has one positive ANA titre 1:160. Then I've had elevated dsDNA while ANA is negative. I've been really sick since 2014 with no real answers. I have all symptoms...Reactions 0 reactions Comments4 repliesDiagnosis
Active 6 days agoWhat tips do you have for managing medications?Once I week I refill my pill boxes with my medications. It takes me about 20 minutes and I try to take time each week to check if I have...Reactions 0 reactions Comments17 repliesTreatment
Active 7 days agoDry mouth with watering Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...Reactions 0 reactions Comments5 repliesSymptoms
COVID19Has anyone with lupus survived COVID-19...Reactions 0 reactions Comments6 repliesFatigueJoint Pain
