FeaturedActive 7 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments27 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions 0 reactions Comments2 repliesCaregiving
Active yesterdayUndiagnosed, SLE?Hello all, My wife's Nuclear Antibody Titre is 1:320 (Homogenous pattern) and her follow-up tests showed the following: dsDNA Antibody : 16 IU/mL B2 GlYCOPROTEIN 1 lgG ANTIBODY: >115.0 u/ml...Reactions 0 reactions Comments5 repliesDiagnosis
Active yesterdayMedication Denied Just looking for some advice. In addition to lupus, I’ve also been diagnosed with congested heart failure, hypotrophic cardiomyopathy. Afib, and pulmonary hypertension. For years I was on plaquenil ...Reactions 0 reactions Comments2 repliesCaregivingTreatmentCoping
Active 3 days agoLupus Awareness Have you learned anything new about lupus that you didn’t know this lupus awareness month...Reactions 0 reactions Comments2 repliesAwareness
Active 3 days agoRashSo does anyone else get rashes on their arms and hand? I walked around a craft show for an hour and the next day had a rash on my whole...Reactions 0 reactions Comments4 repliesSymptomsButterfly Rash
Active 3 days agoTrush vs Lichen PlanusI've been diagnosed years ago with severe candida. I've also had patches that remind me of what I've read about lichen planus.. I started researching and discovered both pertaining to...Reactions 0 reactions Comments2 repliesSymptomsSores
Active 4 days agoConfused and undiagnosed I've has one positive ANA titre 1:160. Then I've had elevated dsDNA while ANA is negative. I've been really sick since 2014 with no real answers. I have all symptoms...Reactions 0 reactions Comments4 repliesDiagnosis
Active 5 days agoWhat tips do you have for managing medications?Once I week I refill my pill boxes with my medications. It takes me about 20 minutes and I try to take time each week to check if I have...Reactions 0 reactions Comments17 repliesTreatment
Active 5 days agoDry mouth with watering Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...Reactions 0 reactions Comments5 repliesSymptoms
Active 8 days agoCOVID19Has anyone with lupus survived COVID-19...Reactions 0 reactions Comments6 repliesFatigueJoint Pain
