FeaturedActive 3 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments202 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active yesterdayDry mouth with watering Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...Reactions0reactionsComments91 repliesSymptoms
Active 3 days agoConstant fatigue Daily, I am extremely tired. Does anyone have tips to help?...Reactions0reactionsComments141 repliesFatigue
Active 4 days agoDisability Hi, I was wondering if anyone has applied for disability and what the process is. I've heard the majority of people get denied the first time and have to appeal...Reactions0reactionsComments10 repliesCostInsurance & Disability
Active 4 days agoHip PainDoes anyone have trouble with hips aching?...Reactions0reactionsComments50 repliesSymptoms
Active 5 days agoDisability Hi everyone, I'm going to my disability hearing next month and wanted to know if anyone had any suggestions as to what to expect....Reactions0reactionsComments11 replies
Active 6 days agoChange in Diagnosis from LUPUS to MCTDI was diagnosed with Lupus in 2002. I began taking hydroxychloriquine. In 2010 I moved to another state, and the rheumatologist redid all my testing to make his own diagnosis...Reactions0reactionsComments3 replies
Active 6 days agoWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...Reactions0reactionsComments139 repliesAwareness
Active 6 days agoWhen to go to the ER.... I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...Reactions0reactionsComments24 repliesSymptomsDiagnosisTreatment
Active 7 days agoBrain fog and fatigueHi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...Reactions0reactionsComments2 replies