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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active today

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...

Active yesterday

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Active yesterday

Pain Is A Ten

I have been dealing, again, with a flare for 2 weeks. Waiting on my Rheumatologist to call me back. My pain is 10 on most days. I know this because...

Active yesterday

COVID19

Has anyone with lupus survived COVID-19?...

Active yesterday

New Brand of Hydroxychloroquine

New brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my older hydroxychloroquine. Old pill round marked GG260 new...

Active yesterday

Diet

Anyone on a special diet to help with flareups?...

Active yesterday

How to deal with the flushes of heat and pain on each side of my head?

Active yesterday

Brain fog and fatigue

Hi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...

Active 2 days ago

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Active 3 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...

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