FeaturedActive todayIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments194 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments5 repliesCaregiving
Active todayJust diagnosed with Lupus- scared, so many questions.I will try to keep this short but here’s the back story before I ask questions. I’m a 32 year old female. May of last year- I started having symptoms...Reactions0reactionsComments0 replies
Active todayInvisible Disability DiscriminationFor those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing you are disabled because when they see you...Reactions0reactionsComments43 repliesTips & AdviceInsurance & Disability
Active todayWhen to go to the ER.... I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...Reactions0reactionsComments4 repliesSymptomsDiagnosisTreatment
Active todayRed Light TherapyI was wondering if anyone on here has tried the Red Light Therapy. I have but then I also react to the sun so I didn't know if the Red...Reactions0reactionsComments2 repliesSun SensitivityJoint PainTips & Advice
Active todayProtecting Your PeaceThe holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...Reactions0reactionsComments24 repliesCopingMental HealthTips & Advice
Active todayThanking CaregiversIf you could write a letter to your main caregiver, what would you say? I know sometimes I forget to thank my husband for all he does for me. I...Reactions0reactionsComments0 repliesCaregiving
Active 2 days agoPerception ChangeHow has your perception of lupus changed over time?...Reactions0reactionsComments0 repliesAwarenessTips & Advice
Active 2 days agoFamily SupportHow do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without...Reactions0reactionsComments43 repliesFriends & Family
Active 2 days agoTriggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...Reactions0reactionsComments97 repliesButterfly RashFatigueSun Sensitivity