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Diet

Anyone on a special diet to help with flareups?...

Nobody Gets It

Sometimes I feel like a little old lady or a broken record when I hear myself saying my head hurts, or my back hurts, or my elbow hurts, or whatever...

Medicare

After turning 65 I found out that people who are on Medicare cannot get benefits from Benlysta Co-pay assistance. Does anyone else have this problem and if so please tell...

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...

So Dumb I Am

Well, I did it again. I went to the pharmacy to pick up my meds and the pharmacist asked for my address to verify and I couldn't remember my house...

Brain Fog

I have such a difficult time in the store staying focused to follow my list. I have gone to my car and cried because I can't figure out what I...

Keep my spoons

I got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...

Taking notes to the doctor.

I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always felt that I should write them on paper...

Brain fog

What is brain fog...

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