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Read conversations, start a discussion, and connect with others about Lupus.

Active 7 days ago

Nobody Gets It

Sometimes I feel like a little old lady or a broken record when I hear myself saying my head hurts, or my...

Lupus

I have been sick for over a year. Unexplained exhaustion, pain in shoulders, back and knees. It literally hurts to take a...

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but...

Diet

Anyone on a special diet to help with flareups?...

Medicare

After turning 65 I found out that people who are on Medicare cannot get benefits from Benlysta Co-pay assistance. Does anyone else...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do...

So Dumb I Am

Well, I did it again. I went to the pharmacy to pick up my meds and the pharmacist asked for my address...

Brain Fog

I have such a difficult time in the store staying focused to follow my list. I have gone to my car and...

Keep my spoons

I got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep...

Taking notes to the doctor.

I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always...

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