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3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate.
2. Do you guys ever get tongue tied? I physically struggle with talking some days bc of spending most time alone and brain fog.
3. I get really irritated and angry when I'm overstimulated. Is this normal?"

  1. I am really angry some days and others I find myself crying a lot! Which for me that’s a hard one since I never was one to cry. Or share how I felt. I am on medication and have had it changed recently it’s some times I feel like I just don’t care about anything. Depression for me is awful 😢

    1. hi thank you for your message. I’m starting on my second flu virus. I made a mistake and went and got my Ben list when I shouldn’t have. Oh well I’m on about medication’s about 15 to 18 pills a day not to mention my infusions like I said from Ben Lester and my migraine medication cause I get cluster migraines and that’s funny you mentioned YouTube I watch it too. I listen to oceans waves sometimes I listen to music I like to paint sometimes I’m just starting after three or four years of trying it out again see what happens. I’ll keep you in touch. Thanks again for the encouraging message. Thank you.

    2. ,
      We appreciate you sharing your kind words of support.
      ~Doreen (Team Member)

  2. ,
    Sleep is a popular discussion in this community. For many, lack of sleep is rather common and most usually pain related. For some, a restful night's sleep can be treatment related.
    Brain fog is quite common in Lupus and can certainly affect one's speech. You re certainly not alone. You may find this link helpful: https://lupus.net/video/lupus-fog-tips
    In addition, a chronic condition can make anyone irritable and angry. I do hope others will chime in soon with their own personal experiences.
    Many hugs, Doreen (Team Member)

    1. talk about angry yeah I like it’s really nice to see that others in this group deal with the same thing cause I’m I deal with it pretty bad and like I said in my message, I never used to cry it. It took me forever to cry now it’s just like I cry and punch the pillows all at once and yeah, thanks for the message.

    2. ,
      Always know this community understands and is here for you.
      Reach out anytime.
      ~Doreen (Team Member)

  3. I sleep about 5-7 hours depends on my pain level.

    tongue tied is an understatement I sometimes wonder if there is someone in my mouth holding and twisting my tongue.

    I. A say overstimulation for me can get me a little perturbed. But mostly I just withdraw

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