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Read conversations, start a discussion, and connect with others about Lupus.

Active 3 days ago

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a barrel. Feel awful, weak in the knees....

Active 5 days ago

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...

Vivid, nightly, disturbing dreams

I have had Lupus all my adult life, now aged 87, was put in Depression bóx' in my 30's and was not correctly diagnosed until i was in my 60's...

Insomnia with Saphnelo?

Do you experience insomnia with Saphnelo? I do and can be up for 24 hours after the infusion....

Anyone have lower back pain NOT lupus nephritis?

Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and positive Lupus anticoagulant and Anticardiolipin. I did well...

Nocturia

Does anyone have to get up 5 times a night to pee? I've tried to stop drinking several hours before bed and I still get up several times a night...

Has anyone done the Benlysta infusions?

I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...

Lupus and itching

I'm new to lupus and I'm waiting to see a rheumatologist but since I found out that I more than likely have lupus my skin condition has gotten way worse...

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