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tremors

Has anyone ever gotten tremors? Twice now, I have gotten tremors that were like my whole body getting the shakes uncontrollably, and...

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a...

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do...

Vivid, nightly, disturbing dreams

I have had Lupus all my adult life, now aged 87, was put in Depression bóx' in my 30's and was not...

Insomnia with Saphnelo?

Do you experience insomnia with Saphnelo? I do and can be up for 24 hours after the infusion....

Anyone have lower back pain NOT lupus nephritis?

Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and...

Nocturia

Does anyone have to get up 5 times a night to pee? I've tried to stop drinking several hours before bed and...

Has anyone done the Benlysta infusions?

I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I...

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