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Read conversations, start a discussion, and connect with others about Lupus.

Active yesterday

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 4 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 6 days ago

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

Should I start methotrexate?

I’m 77 - have had three major joint operations in this past year; left rotator cuff, left partial hip replacement (not a...

Cannabis

Has anyone tried using medical cannibis for Lupus? I hear many great things about it but I would like to talk to...

Recently diagnosed with Lupus

Hi - Recently diagnosed with Lupus that attached the sac of my heart so my main discomfort/pain is in the chest area...

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

Abdo symptoms

Does anyone suffer with abdominal symptoms with their lupus I have been exhausted for 4 weeks. Having a CT scan tomorrow and...

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

Hair loss

My daughter’s been diagnosed with stage 2 lupus and along with other issues she is suffering hair loss. I wondered if anyone...

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