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Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a barrel. Feel awful, weak in the knees....

Insomnia with Saphnelo?

Do you experience insomnia with Saphnelo? I do and can be up for 24 hours after the infusion....

Sleep Habits

How well do you sleep at night? What are your tricks to help you sleep better?...

Anyone have lower back pain NOT lupus nephritis?

Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and positive Lupus anticoagulant and Anticardiolipin. I did well...

Nocturia

Does anyone have to get up 5 times a night to pee? I've tried to stop drinking several hours before bed and I still get up several times a night...

Has anyone done the Benlysta infusions?

I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...

Lupus and itching

I'm new to lupus and I'm waiting to see a rheumatologist but since I found out that I more than likely have lupus my skin condition has gotten way worse...

sleep

how do you get a good nite sleep when the pain wakes you up? do not like sleep aids....

Night Sweats

Hi community!! I am having trouble sleeping at night due to night sweats and pain. Every single night I am find myself tossing and turning……drenched in sweat all over. This...

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