Active todayRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments39 repliesCopingJoint PainSymptoms
Active todayHip PainDoes anyone have trouble with hips aching?...Reactions 0 reactions Comments47 repliesSymptoms
Active todayHair thinning Has anyone experienced thinning hair on one side? I know hair thinning is typical for older women but this started when I started having lupus symptoms about 10 yrs ago...Reactions 0 reactions Comments6 repliesSymptoms
Active 2 days agoBrain fog and low energyHi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...Reactions 0 reactions Comments2 repliesFatigueJoint PainSymptoms
Active 3 days agoChronic UTI’s & lupus nephritis I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...Reactions 0 reactions Comments16 repliesSymptoms
Active 5 days agoMy body is swollen all the time.I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...Reactions 0 reactions Comments34 repliesCopingJoint PainSymptoms
Active 6 days agoSwelling in my feet and legs Does anyone have trouble with swelling in your feet and legs if so what do the Dr's do for you is this a flare up...Reactions 0 reactions Comments15 repliesSymptomsTips & Advice
Active 6 days agoMouth sores/ulcersOne of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to two weeks. They are extremely painful and nothing...Reactions 0 reactions Comments79 repliesSoresSymptomsTreatment
Breathing Has anyone have trouble with breathing like the feeling of not getting enough air or going up level of stairs your out of breath? I get this sometimes like now...Reactions 0 reactions Comments12 repliesCopingSymptoms