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Active 7 days ago

Undiagnosed and meeting with primary care. Feeling nervous.

Hello. I have had odd symptoms on and off over the years but recently I put them all together and now wonder if it could be lupus. I'm hitting many...

Nailed it 🥹

How many of you have issues with your toenails or fingernails? Do your toenails fall off or do you have weak and fragile fingernails? How does your doctor handle this?...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to two weeks. They are extremely painful and nothing...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

When to go to the ER....

I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...

Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist pain and a finger that is buckling that...

Mystery lumps on forehead

Diagnosed with lupus in June but awaiting results from a full panel lab test to give my Dr some more info. Anyone get random knots/ swelling on forehead and upper...

Swollen hand and foot

In 2016 my left hand swelled up in ED white count high they did surgery on wrist no infection present. Recent see swelling of right hand and left foot in...

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