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Read conversations, start a discussion, and connect with others about Lupus.

Active today

Feeling Torn - Conflicting Advice from 2 Care Providers

So, I am 6 years into my Lupus Nephritis diagnosis. All along, joint pain and stiffness has been a big side effect...

Active 3 days ago

Recently Diagnosed. Constant Wrist Pain - Any Help?

I'm a Nigerian recently diagnosed with lupus. I have this constant wrist pain that has refused to go away despite taking NSAIDs...

Active 3 days ago

I finally am diagnosed but it took 35 years

I was pretty sure for 20 years I had an autoimmune disease, but my ANA was negative and my doctor refused to...

Active 4 days ago

SO TIRED OF LUPUS

Having too many infused days of the drain lupus has taken on my mind and body...

Active 4 days ago

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active 4 days ago

Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I...

Active 6 days ago

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Active 7 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

Do you wear a medical alert bracelet?

Do you wear a medical alert bracelet for lupus or any other comorbid conditions? Has it ever come in handy or helped...

Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist...

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