Brain fog and low energy
Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said it would help with low energy. He was wrong. My joints and muscles actually are worse than ever before. It’s so bad that even my heels hurt along with my fingers and toes. I’m almost at my breaking point because my doctor doesn’t take me seriously when I tell him how bad the pain is now.
First off let me say that I’ve been in your exact spot more than one time. For years my drs have pushed exercise, telling me how much better I will feel. And I ignored them every time. (I’ve been diagnosed since 2012) In October, I started a weight loss journey and just started walking my dog. At first I tried to push myself. Those were the days I ended up feeling just like you. So I decided I was just going to listen to my body. Some days we walk half a mile. Some days we walk two miles. And I won’t say it gives me more energy but I have noticed I do feel a little better. Over the years I’ve tried all kinds of crazy things that my drs would say would help me. Hot yoga. NO. Weight training, no matter how low the weight. NO. But I don’t mind a stationary bike. Or a nice slow walk. But you just have to listen to your body. I haven’t walked for four days bc I’ve been on a bad flare. Thanks to the crazy weather. I’m hoping tomorrow will be better. I’m also hoping your figurative tomorrow (I am not sure when you wrote this or when you’ll see tnis) will be better as well.
As far as your dr not listening. This is one of my passions. It sounds like it is time to get a second opinion. When you have a dr who is no longer listening, or you don’t see eye to eye. It’s time to move on. But I encourage everyone to get a second opinion, especially when you are newly diagnosed. But also in cases like yours. We have to advocate for ourselves because there is no one who will advocate for us better!
Sending gentle hugs.
Amber B, RN (lupus.net team moderator)thank you for your reply! I’m limited as to what rheumatologist I can see due to insurance and there are not many choices as to who I can see. Im glad you are able to listen to your body. I think I need to do the same. It’s difficult to get up every morning because of the pain. It takes me 2 hours to get my body moving. I’m actually experiencing one of the worst flares I’ve had. Been suffering with Lupus since 2019. I hate to think how much worse this could be. I am thankful that I do have a couple good days a month and that is when I get household chores done. Again, thank you for your response. It is nice to
know I am not alone.
brain fog is one of the worst symptoms I know this article can shed some light and provide some help https://lupus.net/symptoms/brain-fog
~Racquel~ lupus.net team member
Sometimes I laugh and I really don't know what I am laughing at bahaha see
Frustrating/ Embarrassing
