Kaybee
Doreen H Community Admin
That must be so uncomfortable.
Does ice help at all?
I do hope others in the community will chime in with some helpful suggestions.
In the meantime, we always recommend bringing any new or changing symptoms to your healthcare providers attention.
My best, Doreen (Team Member)
Bernie Member
I get nuclear flushes and my skin is so inflamed and hot all over. Even my rheum commented on it at my last appointment. The only thing to calm this down for me has been my immunosuppressant, CellCept. Oh it's also helpful for me getting to bed before 9. My body has an internal clock that tells me when I've stayed up past this time. I use an as-needed anti anxiety pill too. And absolutely no outdoors on high UV days, which sucks. But the most effective thing for me has been CellCept. Yay lupus 🙄🥵
Doreen H Community Admin
Hey
Those flashes sound miserable.
I'm glad you found something that is making a bit of a difference for you.
All my best, Doreen (Team Member)
Michelle99 Member
I get this too. My skin hurts a lot all the time. I cannot find a Rheumatologist that takes my insurance I'm on SS because I can't work anymore. My whole body gets sore if I stay up too late. I cannot go out in the sun during the day in the evening it's not so bad but I live in Texas and it's hot hot hot so I can't go outside to sit on the deck in the evening because I get sick and start throwing up. Right now I have sores on my scalp, my face of course my arms, legs and privates. I know it's TMI but I know all of you understand. I'm tired all the time. It's a monster disease. I use magnesium it helps my body to relax some and helps some. I use ice packs to cool my face and arms. I have Faith in Jesus and I know I'm never alone. God bless all of you Lupus Warriors!!💜💜💜
Doreen H Community Admin
I am so sorry to hear how challenging it has been for you.
I'm sure the current Texas weather is not helping at all.
Here's hoping you find some relief soon, and may your faith continue to give you strength and support.
My best, Doreen (Team Member)
CommunityMember3e5e51 Member
So much of what your saying is me. I'm doing my best to push threw things are getting harder I'm to stubborn to give in for my own good. Yet I believe I am learning the hard way joint pain is starting to limit some movement no matter how hard to press through. Trial and error with meds so I guess it's time and knowing my Faith will get me through
Doreen H Community Admin
Finding the right treatment can certainly be frustrating.
I hope you will soon find something that will make a difference for you.
Always know this community is here for help and support.
~Doreen (Team Member)