Active 4 days agoMy body is swollen all the time.I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...Reactions 0 reactions Comments23 repliesSymptomsCopingJoint Pain
What helped my lupusUpdate: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...Reactions 0 reactions Comments3 repliesCopingJoint PainTips & Advice
Relatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments2 repliesSymptomsCopingJoint Pain
Tilted Kidneys and diagnosisHi everyone. I’m learning about Lupus, being referred to rheumatologist and my head is in a spin but also making sense why I’ve been so bad for so long. I...Reactions 0 reactions Comments4 repliesDiagnosisDiet & NutritionJoint Pain
Should I be worried about unexplained bruises on the wrist, knuckle and elbow of one arm?Hi all 👋 really happy to have found this community, as I’m a bit stumped and could do with another pov (or two!). I’ve been diagnosed with hypermobility and inflammatory...Reactions 0 reactions Comments2 repliesSymptomsJoint PainTips & Advice
COVID19Has anyone with lupus survived COVID-19...Reactions 0 reactions Comments14 repliesFatigueJoint Pain
PainHi! I’ve been diagnosed with lupus since 2015. But I only flared up last year June. Since then, my pain never stopped. I am currently on Plaquenil but it is...Reactions 0 reactions Comments5 repliesCopingJoint Pain
Hughes Syndrome & Throat ClunkingHave read many posts on forum and will add stuff myself soon about shared symptoms but besides the many stiffness and pains I have a problem with my throat clunking...Reactions 0 reactions Comments5 repliesBrain FogFatigueJoint Pain
