Invisible Disability DiscriminationFor those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing you are disabled because when they see you...Reactions0reactionsComments55 repliesTips & AdviceInsurance & Disability
Red Light TherapyI was wondering if anyone on here has tried the Red Light Therapy. I have but then I also react to the sun so I didn't know if the Red...Reactions0reactionsComments2 repliesTips & AdviceSun SensitivityJoint Pain
Protecting Your PeaceThe holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...Reactions0reactionsComments24 repliesCopingMental HealthTips & Advice
Perception ChangeHow has your perception of lupus changed over time?...Reactions0reactionsComments0 repliesAwarenessTips & Advice
After Flare Self-CareIt's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after recovering from a flare?...Reactions0reactionsComments28 repliesCopingTips & Advice
Managing Lupus when Treatment Isn't SimpleWhat are your experiences managing lupus when treatment advice isn't clear or you don't have the necessary resources? What helps you get through the day?...Reactions0reactionsComments17 repliesTips & Advice
What advice would you give a friend living with lupus?Everyone here knows what it means to live with a rheumatic condition. If you just learned your friend has lupus – newly diagnosed OR living with it for years –...Reactions0reactionsComments27 repliesFriends & FamilyTips & Advice
New to thisSorry to be nosey, but what is the thing that works best for this condition that you use, or do. Thanks I appreciate it....Reactions0reactionsComments139 repliesTips & AdviceCoping
NeurologistHi everyone, I'm curious if a neurologist can refer an ANA blood test to test for lupus? Or can only a rheumatologist? Thanks...Reactions0reactionsComments3 repliesTips & Advice
Keep my spoonsI got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...Reactions0reactionsComments1 repliesAwarenessTips & AdviceBrain Fog