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Read conversations, start a discussion, and connect with others about Lupus.

Lupus

I have been sick for over a year. Unexplained exhaustion, pain in shoulders, back and knees. It literally hurts to take a deep breath. Now I'm having issues with my...

Protecting Your Peace

The holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...

Documentary

Hi, I just watched a documentary called Pain Warriors on Prime. I can totally relate! The medical profession has failed alot of us with chronic pain issues! I recommend watching!...

3 Questions - Do You Relate?

"(1) How much do you guys sleep on average? I sleep a lot more 9-10 hrs after coming off mycophenolate. 2. Do you guys ever get tongue tied? I physically...

When life becomes too much

My life and journey and path with Lupus wasn't fun but I did it and not imagining it would be harder as the universe loves to do and especially to...

Favorite Book

I am reading a pretty good book called Maame. I went back to my love of reading an actual physical book. It helps me to cope with pain. The escape...

My Wife's Lupus & Depression

Hello, My wife was diagnosed with lupus and neural Sjögren's about eight years ago. She's been getting monthly Benlysta infusions for the past five years. They have helped her flare...

Positivity

It can be tough to stay positive when dealing with the ups and downs of lupus. What are some ways you like to lift yourself up on especially hard days?...

Who experiences this? (Need comfort and advice)

I was wondering if anyone here experiences the same symptoms I have? I have been having cardiovascular and digestive troubles the past few days. My blood pressure goes down while...

Could it really be Lupus-Psychosis?

Hey! I'm German, so I'm sorry for mistakes in advance :D A few years ago I went to the rheumatologist for taking some blood tests. They came back positive for...

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