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Read conversations, start a discussion, and connect with others about Lupus.

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Holiday Tips

Well the Holidays are here. What are some of your holiday tips? My main tip is to remember that you don't have to do it all and taking a break...

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Shame and Guilt

Do you have shame or guilt when needing to rest?...

Keeping personal journal to learn about flares

I was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...

Coping

What’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...

Lupus Life Hacks

Are there any lupus life hacks that you think every lupus warrior should know? One of my most important lupus life hacks is keeping a food, mood, and symptom journal...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

Featured

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Change on seasons

How do you all handle the changing seasons? The weather can definitely affect our bodies so how have you all learned to combat any issues that come along?...

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...

My diagnosis 24 years ago

My diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high school. My government teacher saw I was fatigued...

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