Lupus.net

FeaturedActive 2 days ago

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

232replies

Active 4 days ago

What do you do?

Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...

27replies

Medicare

After turning 65 I found out that people who are on Medicare cannot get benefits from Benlysta Co-pay assistance. Does anyone else have this problem and if so please tell...

1reply

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

116replies

It's Giveaway Time!

Enter for a chance to win a cooling weighted blanket and wireless sleep headphones to help you achieve better sleep! Get more details about the giveaway here.

Protecting Your Peace

The holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...

358replies

Shame and Guilt

Do you have shame or guilt when needing to rest?...

146replies

Fatigue!

There isn't a thing you can do to improve fatigue. I sometimes get up feeling fatigued! But usually I'm good waking up and getting out of bed. My days start...

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Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

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Say it to yourself

If you could tell your pre-diagnosis self something that can help you today, what would it be?...

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My diagnosis 24 years ago

My diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high school. My government teacher saw I was fatigued...