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Read conversations, start a discussion, and connect with others about Lupus.

FeaturedActive 4 days ago

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Protecting Your Peace

The holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...

Recovery After holidays

What are your recovery techniques after the holiday? What do you do to get back to a normal routine?...

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

The Wicked Movie

I am a huge Wicked/Wizard of Oz fan. My oldest sister got me hooked at a very young age. Without any spoilers, I can totally identify with Elphaba. (Wicked Witch...

Holiday Tips

Well the Holidays are here. What are some of your holiday tips? My main tip is to remember that you don't have to do it all and taking a break...

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Keeping personal journal to learn about flares

I was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...

Coping

What’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...

Lupus Life Hacks

Are there any lupus life hacks that you think every lupus warrior should know? One of my most important lupus life hacks is keeping a food, mood, and symptom journal...

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