Active yesterdayBeing better What does “better” beyond lupus and everything else you have going on look like for you?...Reactions 0 reactions Comments4 repliesCoping
Active yesterdayWhat phrases are you tired of hearing?When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...Reactions 0 reactions Comments30 repliesAwarenessCopingFriends & Family
Active 7 days agoPlans for Thanksgiving What are your plans to keep yourself stress free during thanksgiving?...Reactions 0 reactions Comments10 repliesCoping
Afraid to ask for help?Are you afraid to ask for help on your lupus journey? If so, why do you think you have that fear?...Reactions 0 reactions Comments9 repliesCoping
FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments160 repliesAwarenessCoping
What gifts would you want to receive? Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know how best to show up. What gifts would...Reactions 0 reactions Comments12 repliesDiagnosisCopingFriends & Family
Do you experience brain fog? Please share your experience with us!Let's have a frank conversation about brain fog. Brain fog is often described as relentless, frustrating, and a major source of fatigue for up to 60 percent of people living...Reactions 0 reactions Comments3 repliesBrain FogTips & AdviceCoping
New to thisSorry to be nosey, but what is the thing that works best for this condition that you use, or do. Thanks I appreciate it....Reactions 0 reactions Comments1 repliesTips & AdviceCoping
Coping with the first year after diagnosis and tips for keeping track of symptoms I'd love to know how those who have been living with lupus for a while made it through the first year(or more). Between all of the appointments, trying to keep...Reactions 0 reactions Comments4 repliesCoping
Making family believe you really are sickDoes anyone else have their own family believe that there is nothing wrong with them and it's all in your head. This has caused a huge lump on my shoulder...Reactions 0 reactions Comments1 repliesAnxietyBrain FogCoping
