Active todayWhat helps you cope?Lupus can be physically and emotionally draining. What are some things that help you cope on tough days...Reactions 0 reactions Comments33 repliesAwarenessCoping
Active yesterdayWhat helped my lupusUpdate: I'm having lupus, affecting my heart, after I started walking about 20k meters every day (First 7 days, now only 10K in the forrest in the morning), since I...Reactions 0 reactions Comments3 repliesCopingJoint PainTips & Advice
Active 7 days agoMy body is swollen all the time.I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...Reactions 0 reactions Comments23 repliesSymptomsCopingJoint Pain
FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments115 repliesAwarenessCoping
Who do you recommend?I'm Penny and I live in Portage MI, and I was diagnosed last year Feb of 2022 with lupus. I'm also an Avon Representative and want to do a fundraiser...Reactions 0 reactions Comments3 repliesAwarenessCoping
Relatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments2 repliesSymptomsCopingJoint Pain
Body pain/ flare upI take 5mgs of prednisone every day. I hurt every day and it seems that even my diet affects my body. I get what I call rolling flare ups. Constantly...Reactions 0 reactions Comments2 repliesCoping
Rheumatoid arthritis in my hands and fingersI don’t have the pain every day is this unusual sometimes I can barely lift my cup of coffee with one hand, my right hand as it is so terribly...Reactions 0 reactions Comments4 repliesHealthcare TeamAwarenessCoping
2 with LupusWe lost both mother with Lupus how do you cope...Reactions 0 reactions Comments2 repliesCoping
My diagnosis 24 years agoMy diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high school. My government teacher saw I was fatigued...Reactions 0 reactions Comments4 repliesCopingDiagnosis
