Active 6 days agoRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...Reactions 0 reactions Comments41 repliesCopingJoint PainSymptoms
FeaturedActive 6 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions 0 reactions Comments179 repliesAwarenessCoping
Shame and GuiltDo you have shame or guilt when needing to rest?...Reactions 0 reactions Comments77 repliesCoping
What phrases are you tired of hearing?When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...Reactions 0 reactions Comments43 repliesCopingAwarenessFriends & Family
Breathing Has anyone have trouble with breathing like the feeling of not getting enough air or going up level of stairs your out of breath? I get this sometimes like now...Reactions 0 reactions Comments12 repliesCopingSymptoms
My body is swollen all the time.I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...Reactions 0 reactions Comments34 repliesCopingJoint PainSymptoms
Know your triggers?Do you know your flare triggers? If so, what things are triggering flares for you?...Reactions 0 reactions Comments7 repliesCopingSymptoms
After Flare Self-CareIt's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after recovering from a flare?...Reactions 0 reactions Comments23 repliesCopingTips & Advice
How do you cope when you are flaring but you have obligations?Lupus flares can pop up unexpectedly and don't take into consideration your upcoming plans, or obligations with work, family or friends. How do you cope when you are fighting a...Reactions 0 reactions Comments15 repliesCoping
My diagnosis 24 years agoMy diagnosis of Lupus 24 years ago wasn't easy at first. It all started in class during my senior year of high school. My government teacher saw I was fatigued...Reactions 0 reactions Comments4 repliesCopingDiagnosis