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Diet

Anyone on a special diet to help with flareups?...

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Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Thanking Caregivers

If you could write a letter to your main caregiver, what would you say? I know sometimes I forget to thank my husband for all he does for me. I...

Pushing for diagnosis

Hi, My 13yo daughter has been in and out of the doctors for the last two years. She has this recurring rash (see photo) which begins as a red malar...

Traitement bilumumab

Bonjour J'entame un traitement sous injection bilumumab Je suis très fatiguée avec des nausées. J'aurais aimé avoir des témoignages de personnes soignées par ce traitement...

How do I explain this to my family?

My health has been on a downhill slide for about three years. I need to enlist more help from my adult children with household and outdoor work. I was very...

Mold

My partner denied my intuition that we have mold. Hired a woman to look into it. It’s all over bathroom. Worsening my symptoms. He has doubted me so much I...

Is This What Lupus Is Like??

My mom just came to live with my husband and I in may, before that she was 5 hours away, and we had just reconnected...she is in and out of...

Medication Denied

Just looking for some advice. In addition to lupus, I’ve also been diagnosed with congested heart failure, hypotrophic cardiomyopathy. Afib, and pulmonary hypertension. For years I was on plaquenil ...

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