No insurance no doctor support
My daughter is dealing with lupus and has no insurance and doctors over the years have pretty much ignored her feelings, can't afford treatment, can only work ocassionally, afraid meds will only make things worse she has been having some heart issues, I'm concerned as her mother.
She should be eligible for states Medicaid and eventually social security due to Lupus disability. Medicaid will help her apply for social security
Thank you for this information.
Am I wrong in thinking meds for Lupus make the disease worse...heard this ALOT
, I think most folks in this community find medications to be a powerful tool in helping them live with their Lupus, but that's something you can discuss with a doctor, when you are able to get one for your daughter. I cannot advise you or your daughter to take or avoid meds, as that's a very personal decision. There are alternative options that *may* help, but just like medications, what works for one person may not work as well for another. You can learn a bit about them here -- https://lupus.net/complementary-alternative-medicine. They do tend to focus on supplements and vitamins and gentle exercises like yoga and tai chi. These may be more affordable options for your daughter. Also, dietary changes can possibly helpr, too. Here's some info on that -- https://lupus.net/diet. Your daughter's best bet is finding a good doctor that partners with her to find the best treatment options for her, but I realize that may feel like finding a needle in a haystack! I would suggest your daughter practice sun safety, especially if she knows her Lupus is impacted by the sun (so, wear SPF all of the time, wear sunglasses, sun hat, etc). Additionally, the information shared by is a great place to start. Your daughter should, in theory, qualify for some form of insurance. As a mom myself, I know it's so hard to see our kids in pain. I hope your daughter keeps fighting to get the treatment she deserves.
Gentle Hugs, Erin, Team Member.
Thank you so much.
