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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

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Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a...

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Shame and Guilt

Do you have shame or guilt when needing to rest?...

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Family Support

How do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus...

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Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

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What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

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After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after...

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Dry mouth with watering

Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I...

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Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

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Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

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How to deal with the flushes of heat and pain on each side of my head?

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Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

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