Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active today

tremors

Has anyone ever gotten tremors? Twice now, I have gotten tremors that were like my whole body getting the shakes uncontrollably, and I got so cold that it was almost...

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Universal Studios

I am about to go to Universal Studios with my family. I am so worried I will not be able to keep up or endure the heat and the walking...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Rarely seem totally well

I have lupus (SLE) and I am on Rinvoq (immunosuppressant) and Hydroxycholorquine for over a year now. I tried Methotrexate (4 days a week in bed) and Imuran (fatigue, mouth...

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

COVID19

Has anyone with lupus survived COVID-19?...

My horrible journey with Lupus

Hello everyone. I was diagnosed with Lupus 8 months ago. It was a completely traumatizing exhausting journey until I finally able to get a proper diagnosis and a proper test...

Is there a connection between narcolepsy and lupus?

I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so tired and that if I sit or lay...

Categories

Select a category to find topics that interest you.