Tell us about your symptoms and treatment experience. Take our survey here.

caret icon Back to all discussions

LUPUS

LUPUS is a "ghost" ailment. I feel terrible inside. I wish I could wish it away. The symptoms are so uncomfortable. Hands ache or throb constantly, loss of balance, alopecia, weight loss, hot flashes/sweats and energy loss. I am a 61 yy, African American, diagnosed in March 2017. My Doctors have been as supportive as possible. I'm happy my children are adults, It wouldn't be fair to them. I'm in Georgia. I wish I could travel and participate like I used to. Not angry just frustrated.

  1. -
    We hear you. Lupus is certainly an invisible illness.
    I'm saddened to hear how challenging it has been for you. Please know you are not alone.
    This community understands and is here for you.
    Warmly, Doreen (Team Member)

    1. gentle hugs to you. You have every right to be frustrated. Luous is so difficult to handle and deal with. Know that you are not alone we are here to lend a listening ear and support you. Thanks for sharing please reach out if you need more support. ~Racquel~ lupus.net team member

      Please read our rules before posting.