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Read conversations, start a discussion, and connect with others about Lupus.

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...

Documentary

Hi, I just watched a documentary called Pain Warriors on Prime. I can totally relate! The medical profession has failed alot of us with chronic pain issues! I recommend watching!...

Medicare

After turning 65 I found out that people who are on Medicare cannot get benefits from Benlysta Co-pay assistance. Does anyone else have this problem and if so please tell...

Hello!

Hello Everyone! My name is Pamela (Pam). I am 43 years old and I was diagnosed with SlLE lupus at 16 but got sick at 15. I was born with...

Work Injury: and I am stressing

Gm i am a lupus warrior was diagnosed in 2019 just to give you a little history of myself 💜🤓 this is a very serious question that has been heavy...

Lupus and factor 5 a branch off of lupus

I have factor 5 which is a branch off of lupus I am easy to throw clots...

Test Results

I have recently been experiencing arthritis and weakness in my hand. So I went to the doctor and she ordered labs to see if it was RA. The results came...

APS Pregnancy Lupus

Recently been diagnosed with lupus after having complications leading to a baby loss at 23 weeks. Wondering how people went about getting diagnosed and if medications something that help build...

Plaquenil- steroids- Lupus

I have had lupus for 8 years diagnosed have been allergic to everything I have been given. so tired of having joint pain and no DR will give me Tramadol...

No appetite

I feel like food has become a source of anxiety. I don’t know how it will make me feel. I have no desire to eat. I eat a little but...

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