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Read conversations, start a discussion, and connect with others about Lupus.

Finding a good Rheumatologist

I want to find a good Rheumatologist that specializes and understands Lupus. I have not been officially diagnosed yet. I do not want to be told it's all in my...

Lupus and lower leg swelling

Hi, my name is John and I was diagnosed with Lupus 1 month before my 50th birthday (October 2018). I've had just about every symptom that I've read about on...

Taking notes to the doctor.

I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always felt that I should write them on paper...

Anyone have lower back pain NOT lupus nephritis?

Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and positive Lupus anticoagulant and Anticardiolipin. I did well...

Tattoos

Hello, I want to get another tattoo I've done a lot of research but just wanted to see what real people had found getting a tattoo with Lupus? Thanks...

How do I talk to my rheumatologist?

Hi! I'm a new member and have, over the past few years been diagnosed with PsA, Ankylosing Spondylitis, Raynaulds, Asthma, and SVT. And I use to have a spot on...

Lupus Awareness Month

What has been the one thing you’ve learned during lupus awareness month, so far, that you didn’t know before?...

What is the first visit like after Lupus Diganosis

What can I expect for the first appointment to my Rheumatologist First...

Rheumatoid arthritis in my hands and fingers

I don’t have the pain every day is this unusual sometimes I can barely lift my cup of coffee with one hand, my right hand as it is so terribly...

Questions to ask a rheumatologist?

For many managing lupus, it can be difficult to find the right doctor. What questions would you like to ask a rheumatologist that specializes in lupus?...

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