Active yesterdayMethotrexate or Imuran for LupusI was recently prescribed Methotrexate to bring my Lupus and Arthritis under control. Really not liking the choice of taking a chemo drug. Does it really work and does it...Reactions 0 reactions Comments13 repliesTreatment
Plaquenil and mylar rashHello Everyone 🙂, I've been dx'd with RA, Psoriatic Arthritis, and Hashi's for almost 10 years now. My Dr and I both suspect Lupus (despite negative ANA). She prescribed Plaquenil...Reactions 0 reactions Comments4 repliesTreatmentButterfly Rash
Mouth sores/ulcersOne of my most common symptoms of lupus is the moth sores/ulcers. They appear everywhere in my mouth and last up to two weeks. They are extremely painful and nothing...Reactions 0 reactions Comments14 repliesSymptomsTreatmentSores
PlaquenilShould a Lupus patient be taken off of Plaquenil entirely just because of no complaints or bad blood work? My Rheumatologist recently decided to stop prescribing Plaquenil (200 mg once...Reactions 0 reactions Comments1 repliesTreatment
A New Hypothesis: Can Moderate Sun Exposure Prevent SLE Flare-Ups?Hi there, I am currently studying the relationship between vitamin D and the immune system, specifically in relation to SLE patients. Despite my research, I have found limited information on...Reactions 0 reactions Comments1 repliesTreatmentResearch & Clinical Trials
Has anyone done the Benlysta infusions? I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...Reactions 0 reactions Comments16 repliesTreatmentSide EffectsSleep
Methotrexate, has anyone else been prescribed this?I have just been put on methotrexate and I would like to check on the side effects with others...Reactions 0 reactions Comments10 repliesTreatmentSide Effects
Anyone have lower back pain NOT lupus nephritis?Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and positive Lupus anticoagulant and Anticardiolipin. I did well...Reactions 0 reactions Comments19 repliesSymptomsTreatmentHealthcare TeamSleep
SoundbathsHas anyone tried soundbaths to help with chronic pain? ~Racquel~ lupus.net team member...Reactions 0 reactions Comments2 repliesTreatmentCoping
CellceptMy Provider just prescribed me Cell Cept. Has anyone ever tried this drug and did it help...Reactions 0 reactions Comments4 repliesTreatmentSide Effects
