Active 6 days agoProblem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...Reactions 0 reactions Comments87 repliesTreatment
Doctor CareMy rheumatologist will only help with prescribing Mycophenolate and taking blood & urine every 6 months. I'm deathly allergic to Plaquenil or Hydroxycloroquine so all I have is the Cell-Cept...Reactions 0 reactions Comments3 repliesTreatment
Mouth sores/ulcersOne of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to two weeks. They are extremely painful and nothing...Reactions 0 reactions Comments81 repliesSoresSymptomsTreatment
Cart T-Cell Therapy for Lupus/AutoimmuneAfter taking over a decade to diagnose, and now having lived with Lupus for a number of years, which in my case caused Interstitial Lung Disease, Lupus Nephritis, Fibro, and...Reactions 0 reactions Comments3 repliesResearch & Clinical TrialsTreatmentTips & Advice
Anyone have lower back pain NOT lupus nephritis?Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and positive Lupus anticoagulant and Anticardiolipin. I did well...Reactions 0 reactions Comments23 repliesSleepHealthcare TeamSymptomsTreatment
Optical hypertension and fast growing cataractsThis last eye exam, the opthomologist said my cataracts had grown fast and I was suffering from optical hypertension. He said I needed my cataracts removed immediately. As I researched...Reactions 0 reactions Comments11 repliesTreatmentSide EffectsSymptoms
Multiple autoimmune diagnosis I have psa arthritis. I was recently diagnosed with lupus. Can you take one biological that works for both? Is it possible to be prescribed 2 biological at the same...Reactions 0 reactions Comments6 repliesTreatment
What tips do you have for managing medications?Once I week I refill my pill boxes with my medications. It takes me about 20 minutes and I try to take time each week to check if I have...Reactions 0 reactions Comments39 repliesTreatment
CellceptMy Provider just prescribed me Cell Cept. Has anyone ever tried this drug and did it help?...Reactions 0 reactions Comments9 repliesSide EffectsTreatment
A New Hypothesis: Can Moderate Sun Exposure Prevent SLE Flare-Ups?Hi there, I am currently studying the relationship between vitamin D and the immune system, specifically in relation to SLE patients. Despite my research, I have found limited information on...Reactions 0 reactions Comments9 repliesResearch & Clinical TrialsTreatment