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Active today

Anifolumab for SLE

Anifrolumab I was diagnosed with lupus in 2023 but my first flare (which was ignored at the time) was in 2000. I recently found a new rheumatologist and almost didn’t...

Active today

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...

Active 7 days ago

New Brand of Hydroxychloroquine

New brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my older hydroxychloroquine. Old pill round marked GG260 new...

When to go to the ER....

I have been in a flare for awhile now... I have pain in my back, urine test show blood in my urine, fatigue, chest pain here and there, nausea, bowls...

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to two weeks. They are extremely painful and nothing...

coughing

I have a chronic cough and after many doctor appointments, noone can find the cause. Has anyone else been dealing with such a cough?...

Keeping personal journal to learn about flares

I was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...

Things I found that help

Since I suffer with both Lupus & Sjogrens, I found that taking the supplement glutathione and Lactoferrin help. In addition, an infrared sauna....

Benlysta vs Methotrexate

Hello, I was diagnosed about a year ago (last October) and have been on hydroxychloroquine and supplementing with prednisone for flare ups. My flare ups are now fairly frequent and...

Multiple autoimmune diagnosis

I have psa arthritis. I was recently diagnosed with lupus. Can you take one biological that works for both? Is it possible to be prescribed 2 biological at the same...

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