Active 2 days agoProblem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...Reactions 0 reactions Comments65 repliesTreatment
Active 7 days agoWhat tips do you have for managing medications?Once I week I refill my pill boxes with my medications. It takes me about 20 minutes and I try to take time each week to check if I have...Reactions 0 reactions Comments19 repliesTreatment
Anyone have lower back pain NOT lupus nephritis?Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and positive Lupus anticoagulant and Anticardiolipin. I did well...Reactions 0 reactions Comments23 repliesSymptomsTreatmentHealthcare TeamSleep
Multiple autoimmune diagnosis I have psa arthritis. I was recently diagnosed with lupus. Can you take one biological that works for both? Is it possible to be prescribed 2 biological at the same...Reactions 0 reactions Comments3 repliesTreatment
A New Hypothesis: Can Moderate Sun Exposure Prevent SLE Flare-Ups?Hi there, I am currently studying the relationship between vitamin D and the immune system, specifically in relation to SLE patients. Despite my research, I have found limited information on...Reactions 0 reactions Comments7 repliesTreatmentResearch & Clinical Trials
Mouth sores/ulcersOne of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to two weeks. They are extremely painful and nothing...Reactions 0 reactions Comments59 repliesSymptomsTreatmentSores
Has anyone done the Benlysta infusions? I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...Reactions 0 reactions Comments45 repliesSleepTreatmentSide Effects
Scared to Start BenlystaHI Everyone, Would like to hear others experience with Benlysta. I feel this is my only option left and I'm not sure what to do. Thanks!!!...Reactions 0 reactions Comments6 repliesTreatment
Cart T-Cell Therapy for Lupus/AutoimmuneAfter taking over a decade to diagnose, and now having lived with Lupus for a number of years, which in my case caused Interstitial Lung Disease, Lupus Nephritis, Fibro, and...Reactions 0 reactions Comments1 repliesTreatmentResearch & Clinical TrialsTips & Advice
Face Symptoms and Steroid Side-effectsThis post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...Reactions 0 reactions Comments2 repliesSide EffectsSymptomsTreatment
