APS Pregnancy LupusRecently been diagnosed with lupus after having complications leading to a baby loss at 23 weeks. Wondering how people went about getting diagnosed and if medications something that help build...Reactions0reactionsComments1 repliesSide EffectsAwarenessAnxiety
What does a Flare look likeWhat does a flare look like? Pain, swelling? I am not sure when I am in a flare...Reactions0reactionsComments9 repliesSide EffectsSymptoms
Optical hypertension and fast growing cataractsThis last eye exam, the opthomologist said my cataracts had grown fast and I was suffering from optical hypertension. He said I needed my cataracts removed immediately. As I researched...Reactions0reactionsComments11 repliesSymptomsSide EffectsTreatment
CellceptMy Provider just prescribed me Cell Cept. Has anyone ever tried this drug and did it help?...Reactions0reactionsComments9 repliesSide EffectsTreatment
Does anyone suffer from constipation?Hi all. I'm on vacation with my husband and son. Dealing with pain and fatigue have been difficult enough but now I'm constipated, too. I feel bloated and nauseous. I...Reactions0reactionsComments8 repliesSymptomsSide Effects
Has anyone done the Benlysta infusions? I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...Reactions0reactionsComments45 repliesSide EffectsSleepTreatment
Face Symptoms and Steroid Side-effectsThis post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...Reactions0reactionsComments2 repliesSide EffectsSymptomsTreatment
Live shingles vaccination for lupus patients??Anyone had experience of live or non live vaccinations for shingles. Any side effects??...Reactions0reactionsComments4 repliesSide Effects
Methotrexate injectionsI have just started (4 weeks) on 10mg methotrexate by injection. My problem is I am having severe uncontrollable bouts of diarrhoea. I'm afraid to leave the house at the...Reactions0reactionsComments1 repliesSide Effects
Insomnia with Saphnelo?Do you experience insomnia with Saphnelo? I do and can be up for 24 hours after the infusion....Reactions0reactionsComments1 repliesSleepSide Effects