I was going to try the Benlysta or Saphnelo, but was told it wasn't a good idea with this blood cancer I was diagnosed with 3+ years ago. So I canceled, then my Rheumatologist passed unexpectedly and now waiting for an appointment with a new Rheumatologist (6months), couple weeks yet to wait. I'm hoping we'll have this conversation and be able to work something out. I'm just Soo tired of being Soo tired and painful daily. Sometimes the pain meds work sometimes they don't touch the pain at all. Sometimes Tylenol helps other time won't touch it...I just want to have more better days than not. Anyone else have this and did either of those drugs help?