Change in Diagnosis from LUPUS to MCTD
I was diagnosed with Lupus in 2002. I began taking hydroxychloriquine. In 2010 I moved to another state, and the rheumatologist redid all my testing to make his own diagnosis, and he still said Lupus. Once one of the test indicated possible CREST syndrome.
I am now with a different rheumatologist (as the other one left) and now am being diagnosed as MCTD - Mixed Connective Tissue Disease, as I've been several years without a positive antibody. I still have all the same symptoms, no recent flares, and still take hydroxyhloriquine.
Just wondering if anyone else has experienced this.
,
That certainly is frustrating. Unfortunately, we've heard similar stories from others in this community and I hope some will chime in here. (Some have even been diagnosed with both Lupus and MCTD.)
In the meantime, I thought I'd share a few articles that may provide some helpful insight: https://lupus.net/living/misdiagnosis-conditions and https://lupus.net/living/men-with-sle
How are you responding to the hydroxychloroquine?
~Doreen (Team Member)thank you. I have responded very well to the hydroxychloroquine with no side effects. I attribute that to why I no longer have positive ANA and high CRP readings. The doctor was non-committal on that theory. I really am thankful that I do as well as I have. Of course on those days when everything hurts, I sometimes forget how lucky I am.
Melissa,
It's great to hear that you are doing well and the hydroxychloroquine is making a difference.
Here's hoping for many, many more "pain-free" days ahead.
My best, Doreen (Team Member)
