Losing Friends and Family Because of LupusOne of my most painful days with lupus wasn’t a day when my joints were swollen or when my fatigue was overwhelming. It wasn’t even when I was bedridden with...Reactions0reactionsComments0 comments
Road Trip Essentials for Lupus WarriorsMy husband and I recently purchased a car so now I’ve been planning several road trips for the future. But, living with lupus presents unique challenges and we just can’t...Reactions0reactionsComments0 comments
Beyond the Flare: Managing Anxiety Around HealthMy heart skipped a beat. I took a deep breath and then the anxiety hit. I muttered to myself, “What’s wrong with me? Is my lupus messing with my heart...Reactions0reactionsComments2 comments
So When Are You Having Kids?Lately at every party (I guess because I’m married and 34 and childless) people ask, "so when are you going to have kids?". I have a long winded explanation in...Reactions0reactionsComments1 comments
How It Feels to Budget Your EnergyIn my life with lupus, my brain is keeping a constant tally of energy and how to "budget" my energy throughout the day. When the miniseries Maid began streaming on...Reactions0reactionsComments3 comments
Cozy Toes GiveawayWinter is here and that means dry skin, stiff and painful joints, and flare-ups caused by the shift in temperatures. One of the most important things that we can do...Reactions0reactionsComments3 comments
Can You Prioritize Physical Strength With Lupus Pain?One year ago, I began to struggle with pain and instability in my wrists. I had struggled with the pain of lupus arthritis in my hands since the very beginning...Reactions0reactionsComments0 comments
My Neurological Lupus SymptomsComplications from lupus can result in neurological problems, that some may not understand if they are not familiar with how lupus. It can lead to headaches, nerve issues, seizures, and...Reactions0reactionsComments2 comments
Lupus Flare ToolkitLiving with lupus is a constant challenge, but it's one I've learned to navigate with a combination of careful planning and practical tools. Over the years, I've put together a...Reactions0reactionsComments12 comments
Experiencing Lupus Nephritis and Kidney FailureI’ve been living with a condition that has challenged my kidneys for so many years. I was diagnosed with lupus nephritis in 1995 and went through rigorous treatments just to...Reactions0reactionsComments0 comments
6 Budget-Friendly Ways to Stay Calm During Holiday ChaosThe holiday season can be a mix of joy, chaos, and peopling… lots of peopling! We often talk about preparing for the holiday season or finding ways to relax when...Reactions0reactionsComments9 comments
Thank You To My SpouseI don't know where I would be since my lupus diagnosis, without my husband. We met a few months before I got my diagnosis, so we had a brief period...Reactions0reactionsComments6 comments
Lupus and Relationships: Creating Strong Bonds on Your JourneyI heard someone say that the love of family and friends is the glue that holds your heart together. Sometimes living with lupus goes beyond just the medical journey. It's...Reactions0reactionsComments0 comments
Real Skin IssuesHave you ever heard a lupus patient ask to keep a room as dark as possible? Most likely they are allergic to the sun, or their body is running too...Reactions0reactionsComments4 comments
Semaglutide JourneyA while back, I shared as part of my lupus journey how I've also gone through a journey with my weight and body image. My weight is something I have...Reactions0reactionsComments4 comments
Reluctance To Visit the Emergency Room As A Chronically Ill PatientIt was a Thursday night and I was experiencing the ravages of an ear infection that seemed to go from 0 to 100 in approximately 2 hours. I’ve never had...Reactions0reactionsComments17 comments
Living With Lupus and Other DiagnosesGetting a lupus diagnosis was hard enough at the age of 27, and looking back my doctors never prepared me if other diagnoses could follow. I don’t know if they...Reactions0reactionsComments7 comments
Fun Things to Do When You're Sick, But BoredMost lupus patients talk about the fatigue, joint pain, and social isolation that comes with a chronic illness. But a topic you hear about less from chronically ill people is...Reactions0reactionsComments2 comments
My Lupus Advocacy JourneyI thought when I got diagnosed with lupus I would receive a "welcome packet" at the doctor's office, like you do when you get accepted to college. I thought my...Reactions0reactionsComments5 comments
The Doctor Said It's Nothing, But My Body Tells A Different StoryWe've all been there. You sit across from the doctor, relief washing over you as they finally give you a diagnosis. But as you leave the office, a nagging voice...Reactions0reactionsComments11 comments