Is It Worse To Have An Invisible Disability or a Visible One?Like most lupus patients, I always wonder if I’d be treated differently by my family, friends, and doctors if my illness was visible. If I used a wheelchair, would people... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments8 comments
A Personal Triumph for Sun SafetyIt didn’t take long after my lupus diagnosis for me to realize I was likely going to have some level of sun sensitivity, either from the disease or the medications... By Ava Meena4 min readBookmark for laterReactions0reactionsComments2 comments
Grin and Bear It - The Fangs and Flares of the Dentist’s LairOh boy, the dentist's office. A place where I don't exactly RSVP with enthusiasm. It's like I’m in a dental safari, complete with probing tools, buzzing drills, and the ever-so-intimidating... By Racquel H. Dozier4 min readBookmark for laterReactions0reactionsComments0 comments
The Summer and PhotosensitivityWhen you think of summer, what do you think of first!?! For many people they think of vacations, time at the pool, outdoor barbecues, baseball games, and just being outdoors... By Amber Blackburn, RN3 min readBookmark for laterReactions0reactionsComments0 comments
Catching the Flu When ImmunocompromisedIn my work as a violin teacher, I come into contact with dozens of students each day. Unfortunately, this also means that I’m exposed to dozens of students’ germs each... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
My Newest Symptom: CostochondritisAt the beginning of last year I noticed a new symptom that I’ve never experienced before. I remember I was driving at the time when I noticed a sharp pain... By Charlotte Barnett3 min readBookmark for laterReactions0reactionsComments3 comments
The Story of My First Lupus FlareIt was a beautiful day in Munich. My husband and I were both 25 years young and excited for our first real holiday since moving abroad to Germany for his... By Ava Meena4 min readBookmark for laterReactions0reactionsComments0 comments
New Symptoms on A Long Overdue TripAs a lupus warrior who got diagnosed with Sjogren's and non-Hodgkin's lymphoma, I have been very hesitant to travel. I didn't know how my body was going to react. With... By Geri Rodriguez4 min readBookmark for laterReactions0reactionsComments0 comments
A Man's Journey Through a Woman's DiseaseOne of the most pervasive myths is that lupus is solely a woman’s disease. As a man living with lupus, I navigate a landscape riddled with challenges and misunderstandings that... By Emmitt Henderson2 min readBookmark for laterReactions0reactionsComments2 comments
My Lupus Fatigue Is Worse in the MorningsAsk most lupus patients and they’ll tell you that their symptoms are worse at a particular time of day. Many patients feel increased fatigue or joint pain at the end... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
Lupus and Getting A Yearly Skin CheckEver since my lupus diagnosis in 2017, my relationship with the sun has drastically changed. Growing up, I never was into skincare or thought about the lifelong effects of the... By Geri Rodriguez3 min readBookmark for laterReactions0reactionsComments0 comments
Work AccommodationsI wake up in the morning with work, work, work, by Rihanna playing in my head, because that is all I do. I go to work, and am a mom... By Jokiva Bellard2 min readBookmark for laterReactions0reactionsComments0 comments
I Didn't Know I Had a Story, Until I Told My StoryLife has a way of surprising us. Sometimes, the most profound stories emerge from the most unexpected places. My journey with systemic lupus erythematosus (SLE) taught me that resilience and... By Emmitt Henderson3 min readBookmark for laterReactions0reactionsComments0 comments
Products that Make Life with Lupus EasierLife with lupus can be unpredictable, inconvenient, and exhausting. Because I live with daily chronic fatigue, everyday tasks that are easy for other people are not so easy for me... By Meghan Bea3 min readBookmark for laterReactions0reactionsComments0 comments
Dancing with the Butterfly and Taking Control of My Lupus JourneyLiving with lupus is like waltzing with a butterfly in a hurricane. One moment, I'm basking in the sunshine of energy. The next, I'm swept away by a whirlwind of... By Racquel H. Dozier3 min readBookmark for laterReactions0reactionsComments0 comments
What’s The Difference Between Medicare Supplement & Advantage PlansWhen you are signing up for Medicare there are so many options out there and it’s very confusing. Especially when doing it alone, and if you have little knowledge about... By Amber Blackburn, RN3 min readBookmark for laterReactions0reactionsComments2 comments
Would I Be Someone Different Without Lupus?Do you ever feel like lupus is chiseling away at who you are? One chip at a time – getting closer to your core with each strike? Pieces falling away... By Ava Meena4 min readBookmark for laterReactions0reactionsComments6 comments
Lupus and Toxic Positivity: Understanding the Impact on PatientsFor people living with lupus, toxic positivity can impact our lives negatively. Toxic positivity has many definitions. But, overall toxic positivity occurs when encouraging statements are expected to minimize or... By Geri Rodriguez3 min readBookmark for laterReactions0reactionsComments5 comments
Fertility Treatments in Women With LupusLupus is a disorder of the immune system. It affects 23 million people in the United States. Most people with lupus are women. The disease tends to begin in people... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
IntimacyIntimacy and lupus can take a toll on you and your partner, specifically the lack of intimacy that can occur. Is it hard to cater to your partner while sick?... By Jokiva Bellard2 min readBookmark for laterReactions0reactionsComments0 comments