Lupus Flare Toolkit

Living with lupus is a constant challenge, but it's one I've learned to navigate with a combination of careful planning and practical tools. Over the years, I've put together a lupus flare toolkit. It helps me manage the unpredictability of lupus. At times, it helps quell some of the debilitating symptoms that come with flares. I am sharing the contents of my toolkit today. In addition, I will address specific problems that come with lupus flares.

My lupus flare toolkit

For me, one of the most frustrating aspects of a lupus flare is the unpredictability. A flare can be triggered by stress, sunlight, or even an infection. Honestly, if the wind blows too hard it can give me a flare.

These flares always leave me feeling exhausted and in pain. To combat this, I've shared my toolkit below:

Health journaling

I keep a detailed journal, where I record daily symptoms, activities, diet, and stress levels. This helps me identify patterns and potential triggers. We all know that what we do daily can make a difference on how our body reacts. So, keeping a journal allows me to make lifestyle adjustments that could prevent future flares. For example, I've noticed that high stress levels in my life often creates a flare for me. Therefore, I prioritize stress management techniques like meditation, deep breathing and yoga.

Pain and inflammation

Flares come with so much pain and inflammation. To manage this, I keep a supply of anti-inflammatory medications and pain relievers prescribed by my doctor. However, medication alone isn't always enough. I also use a heating pad, ice packs and different lotions and creams. These simple tools usually always alleviate my discomfort. They help to improve my mobility during a flare.

Fatigue is the worst

Fatigue is another one of my major issues during a lupus flare. The overwhelming tiredness that comes on suddenly. Whew, this can make even the simplest tasks feel like a huge mountain to climb.

Conserving energy

To manage this, I've included methods to conserve my energy in my toolkit. First, I break tasks into smaller, more manageable steps. Second, I prioritize activities, making sure that the most important ones get done first. Finally, I use a planner to schedule rest periods throughout the day. Yes, you heard that correctly, I schedule rest. Knowing that I have dedicated times to rest helps me conserve energy and prevents me from overexerting myself.

Brain fog woes

The infamous "brain fog” with a host of cognitive issues is relentless. This makes concentration and memory recall challenging. To mitigate this, I rely on organizational tools like lists and reminders. I have apps on my phone that help me keep track of appointments, medications, and tasks. Additionally, I use a notebook to jot down important information and ideas as soon as they come to mind. This practice ensures that I don’t forget crucial details and helps me stay organized despite the brain fog woes.

Skin rashes

Skin sensitivity and rashes are common during my lupus flares. I have found that they are often exacerbated by sun exposure. Therefore, to protect my skin, I always have a high-SPF sunscreen in my toolkit. I also keep a wide-brimmed hat and long-sleeved clothing with SPF protection. These items shield me from the sun's harmful rays and help prevent my skin flare-ups. Additionally, I keep gentle, fragrance-free moisturizers on hand to soothe any rashes or irritation that may occur.

Emotional health

For me, emotional well-being is just as important as physical health when dealing with lupus. The chronic nature of this disease can lead to feelings of frustration, anxiety, and depression. To address this, my toolkit includes resources for emotional support. First, I talk to my therapist as often as I need. Second, I look for healthy support groups. Support groups with others who understand what I’m going through. Sometimes, just talking to someone who gets it can make a world of difference. Lastly, I journal my feelings to release. It is an amazing feeling to get it all out of my head and put it on paper.

Hydrate, hydrate, hydrate and eat well

Lastly, I’ve learned that staying hydrated is crucial. I've found that dehydration can worsen lupus symptoms. I always carry a water bottle with me to ensure I’m drinking enough fluids throughout the day. Just as a reminder, be careful of your water intake if you have kidney involvement.

I’ve also found that a balanced diet rich in anti-inflammatory foods can help manage my symptoms. So, I include meal planning resources and healthy snack options in my toolkit.

What’s in your toolkit?

My lupus flare toolkit is a collection of items and strategies. They are all designed to address the challenges of living with lupus. From pain management and energy conservation to skin protection and emotional support, each component plays an important role in helping me navigate the ups and downs of this chronic illness. While there is no cure for lupus, being prepared with the right tools empowers me to take control of my health and improve my quality of life.

If you could name the things in your lupus flare toolkit, what would it include? Let me know in the comments. I could always use some more helpful components in my toolkit.