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Twitches/Muscle Spasms, Losing Grip, and Spatial Awareness?

1. Has anyone else ever experienced muscular twitches - they're not limited to one place, are sporadic, and I've noticed that they tend to occur more frequently when I'm tired, stressed, or really tense? In these situations, they can occur multiple times within the course of a few minutes.
2. OR have you ever been holding something and it just slipped out of your grip?
3. OR have you ever struggled with spatial awareness? At times I've been in the midst of turning, have seen a door or cabinet, and have still whacked my hand into it. Like I misjudged the distance or my brain-body connection was foggy and caused me to be clumsy? It's kind of like a spotty or lagging internet connection. Idk how to explain it?

  1. ,
    Your explanation is spot on, and I'm sure many in this community can relate.
    As we wait for others to chime in here, it's important to note that Lupus can cause muscle pain and weakness. Lupus can also affect the central nervous system and the eyes.
    I thought I'd share a few articles that may provide some help: https://lupus.net/eyes and https://lupus.net/complications-comorbidities
    My best, Doreen (Team Member)

  2. Thanks! So far I haven't had any vision problems outside of dry eye

    1. ,
      That's good to hear.
      I just wanted to add to your previous comment...that although muscle spasms and twitches may not be a common symptom of Lupus, they can certainly be a side effect of many medications. Common treatments like corticosteroids (prednisone) or immunosuppressants can cause shakiness, tremors, or muscle spasms.
      In addition, lupus inflammation can damage the nerves in your hands and arms, leading to numbness, tingling, and a loss of grip strength or fine motor control.
      ~Doreen (Team Member)

  3. Thanks for the input! I'm on a pretty low dosage of hydroxychloroquine (400 week/200 mg weekend) and lisinopril (2.5 mg daily) so I would think it's more disease than medication. But I'm also recovering from double tendonitis, so that probably doesn't help the grip strength.

    1. ,
      Oh my goodness, that must be painful.
      Here's hoping for a speedy recovery!
      ~Doreen (Team Member)

  4. Fortunately I'm a year into recovery so it's mostly just dealing with muscle fatigue amd aches as I rebuild strength

    1. , I hope your recovery is going pretty well, minus the muscle issues you have been dealing with lately. I hope you continue to see improvements as you work on building up your muscle strength and endurance!

      Best, Erin, Team Member.

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