Lupus Flare UpdateI ended up seeing my Doctor today as I have some Flu symptoms and he confirmed that I had it mildly as it had caught me during a Lupus Flare... By David Jeal1 min readBookmark for laterReactions 0 reactions Comments0 comments
My Long List of DiagnosesAs a child I got sick so often I was on the verge of truancy. It got to the point my parents thought I just didint want to go to... By Briana Perry/Andrews8 min readBookmark for laterReactions 0 reactions Comments0 comments
My Lupus Advocacy Journey“I have good news and I have bad news. That’s what the doctor said to me in 1994 after he figured out what was wrong with me. I had been... By Cmperron2 min readBookmark for laterReactions 0 reactions Comments0 comments
Long Journey With Lupus and Other Autoimmune ConditionsI was diagnosed with SLE lupus, RA, fibromyalgia, among other autoimmune diseases back in 2004. Through the years, I have dealt with many issues, including having silent, as well as... By Nikki Tetreault1 min readBookmark for laterReactions 0 reactions Comments0 comments
ANA Is Negative: What Is Next?I was diagnosed with lupus in December of 2020. I was in extreme pain for years before that. I went to every scheduled doctor's appointment. Every time I have expressed... By TANISHA461 min readBookmark for laterReactions 0 reactions Comments0 comments
A New JourneyI don't know if I shared my story when I signed up in 2021. If I did, since so much has changed and so much is different and has been... By BrandiD461 min readBookmark for laterReactions 0 reactions Comments0 comments
Still LearningAbout to start month 3 of my Lupus and RA journey and although I am only 59, some days I feel ancient! I am learning daily what triggers my flares... By David Jeal1 min readBookmark for laterReactions 0 reactions Comments0 comments
My Life As a Lupus WarriorI'm 65, and was diagnosed in 1987 first with discoid lupus erythematosus (DLE). A few years later with systemic lupus erythematosus (SLE), degenerative bone and muscle disease, fibromyalgia, and arthritis... By CommunityMembere2dc7f1 min readBookmark for laterReactions 0 reactions Comments1 comments
LoopyI was a first-grade teacher and was diagnosed in 2015. I had all these aches, feeling tired all the time, and I was forgetting everything. I would come home, take... By CommunityMember8601 min readBookmark for laterReactions 0 reactions Comments2 comments
And Then Came LupusAfter many years of getting ill even as a child, lupus should not have been a surprise dx. Fast forward to when I turned 59, still a Clinical Special Education... By Padp1231 min readBookmark for laterReactions 0 reactions Comments4 comments
Lupus After RetirementI developed Rheumatoid arthritis in my early 40's. I was working as a nurse and many days it was difficult to even get out of bet to get to work... By CommunityMembere04d3e1 min readBookmark for laterReactions 0 reactions Comments1 comments
There Is Something WrongI began experiencing headaches in fall of 2013. Suspected sinus infection, so antibiotics given, headaches did not go away. In December, I tested positive for MRSA in my nose. One... By CommunityMemberd6f1e31 min readBookmark for laterReactions 0 reactions Comments0 comments
Lupus: The Great EqualizerI was diagnosed with Lypus, RA, and Fibromaylia. I'm a marine veteran who served proudly. I could run far and do anything. Now, my life has changed drastically. I'm lucky... By CommunityMember3771 min readBookmark for laterReactions 0 reactions Comments0 comments
ExhaustedSince being diagnosed three days before Christmas in 2017, it has been extremely exhausting. It had gotten to the point where it was all I could do to go to... By CommunityMemberc715ac1 min readBookmark for laterReactions 0 reactions Comments2 comments
Me and LupusHello I’m Gina. I was diagnosed with Lupus in 1999. I told my doctor between me, him, and God, we will handle this. I went through months of joint pain... By CommunityMember47436771 min readBookmark for laterReactions 0 reactions Comments2 comments
My Lupus StoryIn 2010 I was experiencing chest pains & fatigue. I thought had the flu or a bad cold. Went to my PCP who then told my mom get me to... By Jnina1 min readBookmark for laterReactions 0 reactions Comments2 comments
Cooking Helps Me RelaxBelieve or not but my way of getting my mind preoccupied when in a flare, is cooking. I cook and add music to the mix and it is so therapeutic... By leea731 min readBookmark for laterReactions 0 reactions Comments6 comments
Mom of Lupus WarriorLupus was introduced to our family when my young niece was diagnosed at just 8 years old with SLE/Lupus Nephritis. Sadly, she recently passed away at 23 years old from... By Lupus Warriors Mom1 min readBookmark for laterReactions 0 reactions Comments1 comments
My Daily StrugglesI started showing signs of the spots right after my son was born in 1995 but didn't get diagnosed to tell 2001 or 2002 when they finally did a biopsy... By CommunityMember22121 min readBookmark for laterReactions 0 reactions Comments1 comments
Change for the BetterI grew up in a happy family, with few health concerns. I had big dreams for the future, and had just finished my freshman year of my undergrad degree when... By Pandora3 min readBookmark for laterReactions 0 reactions Comments1 comments