Hello & Positive Energy from New ZealandIt is spring here in New Zealand and my garden is full of roses daisies & foxgloves bees bumble bees & birds- it is a joy to go out into... By cireland1 min readBookmark for laterReactions 0 reactions Comments1 comments
Meds Questions?I just read about two medications... belimumab and anifrolumab. Is anybody taking these meds, they seem to have severe side effects. Is anybody getting great results from these drugs? Is... By frans3331 min readBookmark for laterReactions 0 reactions Comments1 comments
In Sickness and In Health?Diagnosed with Lupus in 2012 after the loss of my son. My ex-husband stated I wasn't doing enough to take care of myself due to Lupus. We divorced recently and... By CommunityMember14321 min readBookmark for laterReactions 0 reactions Comments1 comments
Finding Out More About LupusOK I have found out in this past month. My lupus has also effected my eyes. I now have Macular degeneration, did you guys know that lupus gives you that?... By LauraS1 min readBookmark for laterReactions 0 reactions Comments8 comments
Is it Lyme Disease or Lupus?Hello I’m 29 years old I was diagnosed with lupus when I was 22. I’ve been healthy my childhood and teen life, I played basketball my high school year and... By Aissa1 min readBookmark for laterReactions 0 reactions Comments3 comments
It Started With a RashI broke out with a rash on April 22 2023. My doctor tested for everything. They asked me if I had ever been tested for lupus. I said no, but... By CommunityMember3f7d301 min readBookmark for laterReactions 0 reactions Comments1 comments
Is This Lupus?Hey everyone, I was recently diagnosed with lupus due to symptoms. But all blood work results, etc. have come back negative. Does anyone else have this? Yet, on an almost... By Shiv1 min readBookmark for laterReactions 0 reactions Comments1 comments
ANA Positive, What's Next?I've been experiencing lupus symptoms for a while now. It started with itchy skin, followed by joint pain and inflammation that gradually became more frequent. I began experiencing extreme fatigue... By Candy1 min readBookmark for laterReactions 0 reactions Comments9 comments
Diagnosed with Lupus One Month AgoI broke out with a skin rash on April 22. I couldn't keep anything down at the time and still can't. I feel itchy all night. That's when they decided... By CommunityMemberc2fb641 min readBookmark for laterReactions 0 reactions Comments6 comments
Fear and HopeAt the end of last July, I had a very difficult breakup. Just weeks later, I was in the hospital, so sick I was sure I was on my deathbed... By CommunityMember5b7ea11 min readBookmark for laterReactions 0 reactions Comments2 comments
Purple Skin PatchI am about to enter month 5 after receiving my lupus diagnosis. I will, again, be going to the Doctor, as my legs are not doing well. Both of my... By David Jeal1 min readBookmark for laterReactions 0 reactions Comments1 comments
My Lupus Plus JourneyHi I’m Saundra, I have had my SLE diagnosis for 43 years now. I am 63 years old. There is nothing on my body that lupus has not effected. Starting... By Sstuart1 min readBookmark for laterReactions 0 reactions Comments3 comments
"I Feel Like It's Unfair"I was diagnosed with SLE a little over a year ago. At the time I was also diagnosed with Sjogrens and Alopecia... This story isn't about my diagnosis though. After... By Kirthi Pather1 min readBookmark for laterReactions 0 reactions Comments1 comments
Lupus Has Hurt MeI have the worst-case scenario of lupus... lupus as well as a brain tumor. The lupus has caused severe pain in my body, emotionally, spiritually, and physically. The rheumatoid arthritis... By GODHEALS74 min readBookmark for laterReactions 0 reactions Comments10 comments
Lupus Flare UpI've suffered since 2004 with joint pain and muscle spasm’s. A hug hurt. My grandson was two and when he would run to say hi and give me a hug... By CommunityMemberae9db31 min readBookmark for laterReactions 0 reactions Comments2 comments
Still No AnswersStill no diagnosis for me... I have even given up going to my GP as it's just a waste of time as they don't seem to believe me and dismiss... By CommunityMember69642001 min readBookmark for laterReactions 0 reactions Comments6 comments
Learning More and MoreI was diagnosed in 2015 RA to only learn that I have SLE Lupus. I just turned 61 on Sunday, I am just starting to experience different issues. I find... By CommunityMember2a39031 min readBookmark for laterReactions 0 reactions Comments6 comments
Alternative TherapyI have a question more than a story, I have people reaching out to me wanting me to try new things and while that is fine, I am absolutely skeptical... By tanialm1 min readBookmark for laterReactions 0 reactions Comments2 comments
My StruggleHello, I have been diagnosed with SLE lupus since 15 years old. I am now 37 as of yesterday. I am very blessed to be alive still and strong. I... By CommunityMember82848a1 min readBookmark for laterReactions 0 reactions Comments2 comments
My Journey with LupusI have just been diagnosed three weeks ago that I have lupus. Three years ago I had deep vein thrombosis and was put on treatment that I completed after six... By CommunityMemberdeb3361 min readBookmark for laterReactions 0 reactions Comments2 comments