Stories

I have SLE Lupus, Sjogens disease, Raynard's disease, and the doctors are not sure if I had a mini-stroke. I spray nitroglycerin under my tongue when my heart rate increases...

I was diagnosed with lupus when I was 11 years old, even before the diagnosis, I suffered from disease symptoms for almost a year. Throughout that year, I was terribly...

Diagnosed Oct '96.. with DVT AND SLE w/anticardiolipin syndrome. I Lost my 1st child @ 5 months and my 2nd son @ 5 months had to lie on the couch...

I was diagnosed with my 1st autoimmune condition as a teen with scalp seborrhea, which the doctor attributed to my adopted mother making me nervous. I married at 21 to...

I was dx'd with RA in 1966 & Lupus in 1989. Between then & now, there wasn't much of a difference between symptoms. I never have been able to tell...

I feel this way every day, but today for some reason, I feel worse. I think I can literally feel myself dying. I had a positive ANA a couple of...

I am a 32-year working female from India, and this is my Lupus Story - Everything was going normal until one day every joint in my body started aching like...

I am 73. I c/o pain in my lower legs to my primary care physician who did testing for a whole battery of autoimmune diseases. My dsdna came back positive...

I am a 75 year old woman who has spent a lifetime trying to recover from the different diagnoses I’ve received over the years from doctors. For many years I...

Diagnosed in my early twenties, Lupus has been a large part of my life for many years, but I feel that I had been suffering from Lupus symptoms for many...

Hi, I’m Claire, I’m 49 and I live in England. I was diagnosed with lupus and Reynolds disease in 2018. Since then I have not stopped struggling. The cold weather...

It is no secret, that keeping a house or apartment clean while managing lupus can be a tad tricky. Over the years since my original suspicions of lupus in 2016...

Almost 5 years ago when I was 50 (55 on Thursday the 29th), I was diagnosed with diabetes. Two years later I started having tingling and burning pain in my...

My happiest memory is an odd one. Many people would say that a happy memory cannot be produced in a place like this. That this is a place where trauma...

For 30 years I lived with pain, chocked it up to my athletics from high school. Lived on ibuprofen for many years. Went to PCP to get something different because...

I woke up on Saturday morning with what I thought was an insect bite on my back and a small rash on my right arm. Traveling home from work around...

After unexplained lesions came across my cheek that would not heal, I was diagnosed with both SLE and Discoid Lupus in 2004. I started on the recommended cycle of drugs...

I recently had my annual check up with blood tests. The results were not as I had expected 🤔 the RA was slightly down, but everything else was elevated. For...

Hello, my name is Qua’Shana Brown and this is my Lupus journey. This journey only goes to really when I got my official diagnosis. A lot happened afterwards. Warning, this...

I had had Fibromyalgia for probably 15+ years when I got my Lupus diagnosis. I was the one that asked my family doctor to run the test. As with Fibromyalgia...