Stories

Diagnosed in my early twenties, Lupus has been a large part of my life for many years, but I feel that I had been suffering from Lupus symptoms for many...

Hi, I’m Claire, I’m 49 and I live in England. I was diagnosed with lupus and Reynolds disease in 2018. Since then I have not stopped struggling. The cold weather...

It is no secret, that keeping a house or apartment clean while managing lupus can be a tad tricky. Over the years since my original suspicions of lupus in 2016...

Almost 5 years ago when I was 50 (55 on Thursday the 29th), I was diagnosed with diabetes. Two years later I started having tingling and burning pain in my...

My happiest memory is an odd one. Many people would say that a happy memory cannot be produced in a place like this. That this is a place where trauma...

For 30 years I lived with pain, chocked it up to my athletics from high school. Lived on ibuprofen for many years. Went to PCP to get something different because...

I woke up on Saturday morning with what I thought was an insect bite on my back and a small rash on my right arm. Traveling home from work around...

After unexplained lesions came across my cheek that would not heal, I was diagnosed with both SLE and Discoid Lupus in 2004. I started on the recommended cycle of drugs...

I recently had my annual check up with blood tests. The results were not as I had expected 🤔 the RA was slightly down, but everything else was elevated. For...

Hello, my name is Qua’Shana Brown and this is my Lupus journey. This journey only goes to really when I got my official diagnosis. A lot happened afterwards. Warning, this...

I had had Fibromyalgia for probably 15+ years when I got my Lupus diagnosis. I was the one that asked my family doctor to run the test. As with Fibromyalgia...

I constantly get tired and sometimes out of breath for no apparent reason. Has anyone been successful by switching to a gluten-free diet? I am now in remission but still...

I've been off work since March. Spent a lot of time back and forth to the doctor. The first few times they completely kept blowing me off and passing between...

I live alone with my little dog , unfortunately my two children are a distance away and are not keen on looking after a 77 year old mum if my...

In the past year my lupus has progressed to arriving monthly. The Prednisone isn't as effective as in the past. Although I never smoked, I have chronic pleurisy, which has...

I am just wondering if anyone has used medical marijuana and if so did it help with pain and symptoms? If was just recently diagnosed and I am a little...

It is spring here in New Zealand and my garden is full of roses daisies & foxgloves bees bumble bees & birds- it is a joy to go out into...

I just read about two medications... belimumab and anifrolumab. Is anybody taking these meds, they seem to have severe side effects. Is anybody getting great results from these drugs? Is...

Diagnosed with Lupus in 2012 after the loss of my son. My ex-husband stated I wasn't doing enough to take care of myself due to Lupus. We divorced recently and...

OK I have found out in this past month. My lupus has also effected my eyes. I now have Macular degeneration, did you guys know that lupus gives you that?...