Stories

I was officially diagnosed only about a year ago. My Mother-RIP-also suffered & lost her battle with this devastating disease. I believe I have been suffering for Lupus for many...

I have developed a system to help my family understand how I am doing each day. I have the traditional 1-10 pain scale, but a physician's assistant I used to...

I was diagnosed when I was 24, at the time my daughters were 3 and 5. I didn't know what was wrong. I went to doctor after doctor trying to...

I was diagnosed with Lupus when I was 21. I had a grand mal seizure and thought it was epilepsy. I didn't know entirely how the disease affected the body...

Just read about the Glandular fever virus connection, I had it at 14, that's 50 years ago. It's incredible isn't it, I directly asked my Rheumatologist (who also now claims...

Lupus, what have you taught me? You've taught me compassion, not to judge anyone, that many suffer in silence - behind a smile while inside they are dying. That the...

After living with Lupus symptoms for years and being diagnosed 2 years ago. I have learned to get at least 10 hours of sleep per night. I take my hydroxychloroquine...

Last year, I decided to make an appointment with the neurologist due to having more than usual nerve pain, especially in my feet and both hands and arms. But the...

22 years ago I finally got my diagnosis but for over 25 years I had experienced symptoms. I had been dismissed by so many doctors. I began to think it...

I was diagnosed with SLE about 6 years ago. I didn't think anything of it because I was never educated by my doctors about what was actually going on in...

I was diagnosed with Lupus in 2014. To say it was a game-changer is putting it mildly. I'm glad I found out later in life, or I would really be...

I was practicing some self-care last summer when I started sweating and felt out of breath and passed out in the spa chair of the nail shop. I woke up...

My name is Amanda, I am 36 years old and this is my story. I had my first autoimmune disorder at the age of 18 months old, I started with...

About 6 years ago I went to my GP with a rash across my neck and other ongoing symptoms. He asked me what I did for a job and when...

I was in my early 30's when I was diagnosed. I'm married, I was raising 2 small boys and the doctor told me I had 5 years to live. After...

I've had Lupus since I was 8 and now I'm 47. I've been in and out of hospitals. I'm so blessed I was able to have one child. I have...

Hi, my name is Sandy. I have been diagnosed with lupus going on almost 4 years now. Let me tell you, at 1st I was angry & disappointed with the...

For at least three years, I had been experiencing the strangest sensations – like my nerves were on fire and my joints were so inflamed that my hands would sometimes...

In 1996 my freshman year of college I was given the word Lupus to title all the rashes aches pains hair loss fatigue. I had no place to put this...

Surprisingly, being diagnosed with lupus (and fibromyalgia) in my early 30s changed my life and opened the world. It created a pathway to find more joy in my life and...