Still No AnswersStill no diagnosis for me... I have even given up going to my GP as it's just a waste of time as they don't seem to believe me and dismiss...reactions6comments
Learning More and MoreI was diagnosed in 2015 RA to only learn that I have SLE Lupus. I just turned 61 on Sunday, I am just starting to experience different issues. I find...reactions6comments
Alternative TherapyI have a question more than a story, I have people reaching out to me wanting me to try new things and while that is fine, I am absolutely skeptical...reactions2comments
My StruggleHello, I have been diagnosed with SLE lupus since 15 years old. I am now 37 as of yesterday. I am very blessed to be alive still and strong. I...reactions2comments
My Journey with LupusI have just been diagnosed three weeks ago that I have lupus. Three years ago I had deep vein thrombosis and was put on treatment that I completed after six...reactions2comments
The Big Mean WolfI was diagnosed in February 2000 when I was 30 years old and a 2 year old little boy. My SLE took about two years to be diagnosed. While waiting...reactions2comments
Lupus Flare UpdateI ended up seeing my Doctor today as I have some Flu symptoms and he confirmed that I had it mildly as it had caught me during a Lupus Flare...reactions1comment
My Long List of DiagnosesAs a child I got sick so often I was on the verge of truancy. It got to the point my parents thought I just didint want to go to...reactions1comment
My Lupus Advocacy Journey“I have good news and I have bad news. That’s what the doctor said to me in 1994 after he figured out what was wrong with me. I had been...reactions1comment
Long Journey With Lupus and Other Autoimmune ConditionsI was diagnosed with SLE lupus, RA, fibromyalgia, among other autoimmune diseases back in 2004. Through the years, I have dealt with many issues, including having silent, as well as...reactions1comment
ANA Is Negative: What Is Next?I was diagnosed with lupus in December of 2020. I was in extreme pain for years before that. I went to every scheduled doctor's appointment. Every time I have expressed...reactions3comments
A New JourneyI don't know if I shared my story when I signed up in 2021. If I did, since so much has changed and so much is different and has been...reactions1comment
Still LearningAbout to start month 3 of my Lupus and RA journey and although I am only 59, some days I feel ancient! I am learning daily what triggers my flares...reactions10comments
My Life As a Lupus WarriorI'm 65, and was diagnosed in 1987 first with discoid lupus erythematosus (DLE). A few years later with systemic lupus erythematosus (SLE), degenerative bone and muscle disease, fibromyalgia, and arthritis...reactions1comment
LoopyI was a first-grade teacher and was diagnosed in 2015. I had all these aches, feeling tired all the time, and I was forgetting everything. I would come home, take...reactions2comments
And Then Came LupusAfter many years of getting ill even as a child, lupus should not have been a surprise dx. Fast forward to when I turned 59, still a Clinical Special Education...reactions4comments
Lupus After RetirementI developed Rheumatoid arthritis in my early 40's. I was working as a nurse and many days it was difficult to even get out of bet to get to work...reactions1comment
There Is Something WrongI began experiencing headaches in fall of 2013. Suspected sinus infection, so antibiotics given, headaches did not go away. In December, I tested positive for MRSA in my nose. One...reactionscomments
Lupus: The Great EqualizerI was diagnosed with Lypus, RA, and Fibromaylia. I'm a marine veteran who served proudly. I could run far and do anything. Now, my life has changed drastically. I'm lucky...reactionscomments
ExhaustedSince being diagnosed three days before Christmas in 2017, it has been extremely exhausting. It had gotten to the point where it was all I could do to go to...reactions2comments
