Last updated: August 2023
Hello, I have been diagnosed with SLE lupus since 15 years old. I am now 37 as of yesterday. I am very blessed to be alive still and strong. I have had two hip replacements and two shoulder replacements now need two knee replacements. I have also been struggling with stage 3 lupus nephritis and antiphospholipid antibody syndrome.
Have there been things you have learned along your lupus journey that you wish had been explained to you by a healthcare provider earlier?