Stories

I constantly get tired and sometimes out of breath for no apparent reason. Has anyone been successful by switching to a gluten-free diet? I am now in remission but still...

I've been off work since March. Spent a lot of time back and forth to the doctor. The first few times they completely kept blowing me off and passing between...

I live alone with my little dog , unfortunately my two children are a distance away and are not keen on looking after a 77 year old mum if my...

In the past year my lupus has progressed to arriving monthly. The Prednisone isn't as effective as in the past. Although I never smoked, I have chronic pleurisy, which has...

I am just wondering if anyone has used medical marijuana and if so did it help with pain and symptoms? If was just recently diagnosed and I am a little...

It is spring here in New Zealand and my garden is full of roses daisies & foxgloves bees bumble bees & birds- it is a joy to go out into...

I just read about two medications... belimumab and anifrolumab. Is anybody taking these meds, they seem to have severe side effects. Is anybody getting great results from these drugs? Is...

Diagnosed with Lupus in 2012 after the loss of my son. My ex-husband stated I wasn't doing enough to take care of myself due to Lupus. We divorced recently and...

OK I have found out in this past month. My lupus has also effected my eyes. I now have Macular degeneration, did you guys know that lupus gives you that?...

Hello I’m 29 years old I was diagnosed with lupus when I was 22. I’ve been healthy my childhood and teen life, I played basketball my high school year and...

I broke out with a rash on April 22 2023. My doctor tested for everything. They asked me if I had ever been tested for lupus. I said no, but...

Hey everyone, I was recently diagnosed with lupus due to symptoms. But all blood work results, etc. have come back negative. Does anyone else have this? Yet, on an almost...

I've been experiencing lupus symptoms for a while now. It started with itchy skin, followed by joint pain and inflammation that gradually became more frequent. I began experiencing extreme fatigue...

I broke out with a skin rash on April 22. I couldn't keep anything down at the time and still can't. I feel itchy all night. That's when they decided...

At the end of last July, I had a very difficult breakup. Just weeks later, I was in the hospital, so sick I was sure I was on my deathbed...

I am about to enter month 5 after receiving my lupus diagnosis. I will, again, be going to the Doctor, as my legs are not doing well. Both of my...

Hi I’m Saundra, I have had my SLE diagnosis for 43 years now. I am 63 years old. There is nothing on my body that lupus has not effected. Starting...

I was diagnosed with SLE a little over a year ago. At the time I was also diagnosed with Sjogrens and Alopecia... This story isn't about my diagnosis though. After...

I have the worst-case scenario of lupus... lupus as well as a brain tumor. The lupus has caused severe pain in my body, emotionally, spiritually, and physically. The rheumatoid arthritis...

I've suffered since 2004 with joint pain and muscle spasm’s. A hug hurt. My grandson was two and when he would run to say hi and give me a hug...