Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

"I Feel Like It's Unfair"

Kirthi Pather's avatar image

By Kirthi Pather

1 min read

I was diagnosed with SLE a little over a year ago. At the time I was also diagnosed with Sjogrens and Alopecia...

Adding Lupus Nephritis to the list...

This story isn't about my diagnosis though. After a short trip to Europe and poor adherence to my medication, I was diagnosed with Lupus Nephritis - kidney disease - a few weeks ago. The malar rash, almost all over my body and a swollen face, scared me. Since then I've been taking Mycophenolate Mofetil, Prednisone and Plasmaquin religiously.

Why am I not feeling better?

"If I take my medication everyday, I should be fine right?". Wrong. I must be doing something wrong for my hair to be falling, I'm 25 years old and balding. In a matter of a week, I discovered NO hair at the back of my head. Lupus has destroyed my self esteem and broken my confidence. I feel like it's unfair that I've been taking my medication everyday, following my doctors orders, and I still have to live with this disease.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Lupus.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Do you read through your insurance policies and ask questions?