Alternative Therapy

By tanialm

1 min read

I have a question more than a story, I have people reaching out to me wanting me to try new things and while that is fine, I am absolutely skeptical to be honest.

I am all for alternative therapies and am going to try Pilates, meditation, reiki etc, some of which I have been doing for a while but my biggest thing is at the moment people are pushing me to listen to this person and try these natural vitamins/supplements and oh look this person cured their Lupus. I get they are trying to help BUT there is no such thing as a magic drop or a cure for Lupus, am I right? I think my mind is getting carried away and I have massive anxiety around this.

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GabbyFormicaCommunity Admin
<inline-mention username="tanialm" user-id="6904550"/>, Thank you for sharing this important question with us. While there are a number of alternative therapies that some lupus warriors have found helpful to integrate into their treatment plans: 1) <a href='https://lupus.net/mental-health/complementary-alternative-therapies' target='_blank'>https://lupus.net/mental-health/complementary-alternative-therapies</a> 2) <a href='https://lupus.net/complementary-alternative-medicine' target='_blank'>https://lupus.net/complementary-alternative-medicine</a> That being said, there is absolutely no magic drop, or oil, or herb that can cure lupus. Everyone's journey is unique to them and their treatment plan may include some pharmaceuticals alongside some of the alternative therapies. Talk to your doctor to figure out a plan that works best for you and don't get caught up in the suggestions of some spammers who don't understand the realities of lupus! We hear you and you are not alone in this, Gabby (team member) 
1. Racquel H. DozierMember
 <inline-mention username="tanialm" user-id="6904550"/> You are absolutely right there is no magic supplement that will cure lupus. If it was we would all be swallowing bottles of it. I often get those statement and I just ask them if they really understand what lupus is. They often can not say they do so I ask how can they really push their product for a cure. I think everyone has an opinion but the only one that count is yours as you work with your doctor. It can be frustrating to have to deal with people who's main goal is to sell you something. I love meditation and reiki and other alternative ways to cope with lupus but I tell everyone that things that boost my immune system aren't helpful in my journey. ~Racquel~ <a href='https://lupus.net' target='_blank'>lupus.net</a> team member
Kathi758Member
I understand all too well, I am sorry that you have to decide between other wants or needs. I was trying for food or lights! then one day everything changed. My support group 6 had gotten pneumonia and missed the one day. Next week all 6 were dead. They all went out to lunch, I couldn't afford. It took me months to get back to my normal. I take 27 different meds so all my money pays for that. But there are available things to get help from. Like CVS have coupons that help people like me. My insurance has extra help, I use that. do some leg work and start asking. go to United way and ask them, Medicaid has ways to help also. 
1. Doreen HCommunity Admin
 <inline-mention username="Kathi758" user-id="2040260"/>, Oh my goodness...I'm sorry to hear about your support group! We certainly appreciate you being here and sharing your experience. ~Doreen (Team Member)