Tell us about your symptoms and treatment experience. Take our survey here.

The Big Mean Wolf

I was diagnosed in February 2000 when I was 30 years old and a 2 year old little boy.

Searching for the right treatment

My SLE took about two years to be diagnosed. While waiting, I was treated for tendonitis, lumbago...
The picture was worrying with arthritis, some skin damage, but above all, a stage 4 glomerulonephritis. The first treatment was based on corticosteroids. Very quickly, cellcept was added with it.

Work complications

A year later, a second flare revealed acute pericarditis.
I was on sick leave for two and a half years and then recognized as a disabled worker.
I was able to benefit from job accommodation for 3 years before succeeding in returning to my first job.
The doctors then stopped the immunosuppressants and introduced Plaquenil, which I took for many years. My retina couldn't take it and I had to stop it.

Starting a new treatment

With the drop in corticosteroids, the pain returned, the markers of lupus being ubiquitous since the beginning of the disease.
Since this week, I have started a new immunotherapy therapeutic trial with belimumab. I have some nausea and fatigue side effects.
Are any of you taking this treatment?
I would be happy to share experiences.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Lupus.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Have you taken our In America Survey yet?