Stories

Hello I’m Gina. I was diagnosed with Lupus in 1999. I told my doctor between me, him, and God, we will handle this. I went through months of joint pain...

In 2010 I was experiencing chest pains & fatigue. I thought had the flu or a bad cold. Went to my PCP who then told my mom get me to...

Believe or not but my way of getting my mind preoccupied when in a flare, is cooking. I cook and add music to the mix and it is so therapeutic...

Lupus was introduced to our family when my young niece was diagnosed at just 8 years old with SLE/Lupus Nephritis. Sadly, she recently passed away at 23 years old from...

I started showing signs of the spots right after my son was born in 1995 but didn't get diagnosed to tell 2001 or 2002 when they finally did a biopsy...

I grew up in a happy family, with few health concerns. I had big dreams for the future, and had just finished my freshman year of my undergrad degree when...

I have an autoimmune illness that no one's sure of. Is it Churg Strauss, Vasculitis or? Or Lupus? Here's what I know, lupus has been identified in blood tests but...

I'm about to be 41, and I got my positive ANA results in March. Looking at the symptoms and old blood work, it is possible that I've had lupus since...

It was discovered that I have lupus while the doctors were searching for the tumor that they eventually located in my pancreas. Unfortunately, the symptoms of lupus and neuroendocrine cancer...

It took 29 years to definitely be diagnosed with systemic lupus. I was nearly 31, (1979) when I was pregnant with my second daughter. Lupus was questioned due to toxemia...

I was diagnosed with lupus in 2021 after 5 long months of pain and no answers. It was a relief to at least have a diagnosis. However, there’s been a...

I would describe myself as a miracle; a determined person who has overcome and survived many physical, emotional, and financial setbacks in life. If I was an animal, I would...

I was diagnosed with SLE lupus and rheumatoid arthritis when I was about 28. Before lupus, I was very energetic, upbeat and always full of life. I had 4 children...

I was diagnosed in 2000 with SLE lupus. I had butterfly patches on my face but eventually they disappeared. I’m always exhausted tired and drained out. 😩 I’m a caregiver...

I was recently diagnosed. It's been exhausting and overwhelming. I'm just trying to cope with it as best as I can. I have Sjogren's, too. Most days I'm in bed...

I was officially diagnosed with lupus in March after suffering from pain and fatigue for years. After a diagnosis of psoriatic arthritis in 2017 and then another doctor dismissing that...

I got diagnosed back in 2015. I didn't have any insurance, so I couldn't afford to get any medication. I stayed going back and forth to the emergency room. I...

Hi, my name is Juanita. I was diagnosed with lupus in 2016. My doctor did not say what kind of lupus. All he said was it would progress. My body...

I was everywhere. I don't drive, but I was present at every event. Every day, I would post whatever activity I participated in on Instagram and Facebook. In 2020, I...

No doubt, a diagnosis of lupus is devastating AND a relief to finally get a name to your pain. I have had to learn to change my priorities in life...