Social Butterfly to HouseflyI was everywhere. I don't drive, but I was present at every event. Every day, I would post whatever activity I participated in on Instagram and Facebook. In 2020, I... By beautifleye1 min readBookmark for laterReactions 0 reactions Comments0 comments
Changing PrioritiesNo doubt, a diagnosis of lupus is devastating AND a relief to finally get a name to your pain. I have had to learn to change my priorities in life... By jerigilstrap1 min readBookmark for laterReactions 0 reactions Comments0 comments
Very Frustrated!!Recently diagnosed with Lupus SLE. My primary doctor, whom I've seen for 8 years was really listening to me. Suddenly I started feeling ALOT more tired than normal. I thought... By Debbiewatson022 min readBookmark for laterReactions 0 reactions Comments6 comments
A Lupus StoryHi, I’m 21, turning 22 this year. For almost all my life, I’ve been in pain but never knew why. It’s like any other lupus story. I can trace symptoms... By Anna.A2 min readBookmark for laterReactions 0 reactions Comments0 comments
Just BeginningI have just been diagnosed in March. Learning how to do everything I can to reduce my flare-ups and reactions is a new journey for me. Every day I experience... By CommunityMember68940771 min readBookmark for laterReactions 0 reactions Comments0 comments
Living Life with LupusThere isn't enough time ever. I found out on my own at requesting certain labwork for Lupus and Sclerodema in 2009. Here we are, 14 years later. No drugs, no... By 1ndun20011 min readBookmark for laterReactions 0 reactions Comments0 comments
My Daughters DiagnosisMy daughter was diagnosed with Lupus Retinopathy. It all started when she woke up after a low-grade fever 99.2. She said she saw spots. When she looked at you straight... By Jewelz18361 min readBookmark for laterReactions 0 reactions Comments0 comments
Lupus Makes Me StrongerCan a disease make you stronger? I started with Fibromyalgia, added Systemic Sclerosis and then Lupus. A few more exotic conditions are thrown in there, just for fun. I've spent... By WildNFree2 min readBookmark for laterReactions 0 reactions Comments0 comments
Dealing with Lupus, Before I Was DiagnosedWhen I was born, my mother had no idea that I had Lupus; After 3 to 4 Hospital stays for Pneumonia, we continued to search for answers. It was not... By CommunityMember1231 min readBookmark for laterReactions 0 reactions Comments0 comments
I Wasn't CrazyEver since I can remember I always knew something was off for me. I would frequently get sick and go through strange episodes of different symptoms that would go unexplained... By BrandeeKeaton2 min readBookmark for laterReactions 0 reactions Comments0 comments
When It StartedHi, I was seven years old when my parents where told I had lupus. I am now sixty years old. I found when was using almost all natural medicine my... By Babygirl601 min readBookmark for laterReactions 0 reactions Comments0 comments
The Transformation: Part 2Well, here I am again...wishing I could be telling you all about a miracle that happened and made me all better. Indeed! That is not what I'm reporting. This seemed... By dickinson13 min readBookmark for laterReactions 0 reactions Comments4 comments
Living With the Pain of LupusHi, my name is Jenn and I’m reaching out for help for my family. We are normally not the ones to ask for any help. We always want to be... By Jpanaia719 min readBookmark for laterReactions 0 reactions Comments1 comments
Ahhh What Fresh Hell Is This Today?It took 4 years to get diagnosed with Lupus, I was told I was depressed and didn't know I was depressed... Even though I had terrible burn blisters all over... By MissDiagnosed3 min readBookmark for laterReactions 0 reactions Comments1 comments
I Miss Her...The Old MeI miss her! The “her” is me, well, the old me. The one that woke up in the morning with a long list of to-dos, a cup of coffee in... By Jackieo2 min readBookmark for laterReactions 0 reactions Comments3 comments
Autoimmune Diseases and What We Aren't ToldHello all, I am in Australia and until 2019 lived a healthy and active life. I have had an underactive thyroid for years (15) or more but have never been... By tanialm1 min readBookmark for laterReactions 0 reactions Comments25 comments
Lupus & DVTHi, I was diagnosed with RA last September, then LUPUS last October & am on daily medication (prednisolone, betolvex & Plaquenil) and weekly medication (Methotrexate followed by folic 2xa week)... By CommunityMember58d7651 min readBookmark for laterReactions 0 reactions Comments1 comments
4A's Sisters Lupus ClubAdvocates for Lupus are us 4 Sisters here in Louisiana. Once the 3 sisters' biological mother passed at an early age of 30 in late 1965, leaving six kids to... By bandrus51 min readBookmark for laterReactions 0 reactions Comments1 comments
Finally Finding A Lupus CommunityHi all, I am going to tell you right away that I am not a USA citizen. I live in Europe, close to Brussels, which is considered it's capital by... By BieBie6 min readBookmark for laterReactions 0 reactions Comments4 comments
Nerve PainHi, for many weeks now, I seem to be suffering from something I can only describe as nerve pain at night. This keeps me awake most of the night it... By Cazmarglom1 min readBookmark for laterReactions 0 reactions Comments5 comments