Mom of Lupus Warrior
Last updated: August 2023
Lupus was introduced to our family when my young niece was diagnosed at just 8 years old with SLE/Lupus Nephritis. Sadly, she recently passed away at 23 years old from cardiac arrest. My daughter was diagnosed at 10 years old after Lupus unexpectedly hit her like a freight train & had her in the hospital for 2 weeks, in extreme pain & barely able to move.
Years later, my sister (my niece's mom) was diagnosed with Lupus after years of strokes & doctors couldn’t find a cause. It has left her with a TBI & needing a lot of help. Unfortunately Lupus has effected our family greatly.
How are you most likely to respond when someone offers you unsolicited advice about your lupus?