The Transformation: Part 2Well, here I am again...wishing I could be telling you all about a miracle that happened and made me all better. Indeed! That is not what I'm reporting. This seemed...Reactions0reactionsComments4 comments
Living With the Pain of LupusHi, my name is Jenn and I’m reaching out for help for my family. We are normally not the ones to ask for any help. We always want to be...Reactions0reactionsComments1 comments
Ahhh What Fresh Hell Is This Today?It took 4 years to get diagnosed with Lupus, I was told I was depressed and didn't know I was depressed... Even though I had terrible burn blisters all over...Reactions0reactionsComments1 comments
I Miss Her...The Old MeI miss her! The “her” is me, well, the old me. The one that woke up in the morning with a long list of to-dos, a cup of coffee in...Reactions0reactionsComments3 comments
Autoimmune Diseases and What We Aren't ToldHello all, I am in Australia and until 2019 lived a healthy and active life. I have had an underactive thyroid for years (15) or more but have never been...Reactions0reactionsComments23 comments
Lupus & DVTHi, I was diagnosed with RA last September, then LUPUS last October & am on daily medication (prednisolone, betolvex & Plaquenil) and weekly medication (Methotrexate followed by folic 2xa week)...Reactions0reactionsComments1 comments
4A's Sisters Lupus ClubAdvocates for Lupus are us 4 Sisters here in Louisiana. Once the 3 sisters' biological mother passed at an early age of 30 in late 1965, leaving six kids to...Reactions0reactionsComments1 comments
Finally Finding A Lupus CommunityHi all, I am going to tell you right away that I am not a USA citizen. I live in Europe, close to Brussels, which is considered it's capital by...Reactions0reactionsComments4 comments
Nerve PainHi, for many weeks now, I seem to be suffering from something I can only describe as nerve pain at night. This keeps me awake most of the night it...Reactions0reactionsComments4 comments
Renae's StoryI wasn’t diagnosed until I was 30, but I have had symptoms since I was 10 yrs old. All the other kids got to go to town to the pool...Reactions0reactionsComments5 comments
Lupus rashHi sorry to put this, but my feet around my ankle area drives me mad with this rash. It goes up the back of my ankle and on top of...Reactions0reactionsComments6 comments
My Skin Is What Got Me TestedI was officially diagnosed with SLE early this past November, although it had been suspected by doctors for about a year. I am 66 years old and have been suffering...Reactions0reactionsComments7 comments
No Support SystemI was diagnosed with lupus in October 2019 and it’s been rough. Every time I try and explain it to a few family members and especially my husband. He thinks...Reactions0reactionsComments10 comments
Still No DiagnosisI have been suffering for many years with lots of symptoms... They keep telling me I have fibromyalgia. I have been seen by a rheumatologist who told me that it...Reactions0reactionsComments1 comments
I Never Thought…I’m a 62-year-old white male. For the last 17 years, I’ve been treated with multiple surgeries on my spine, from my neck to my lumbar. The doctors thought it was...Reactions0reactionsComments3 comments
Multiple Autoimmune ConditionsI was diagnosed with MS in August 2007 at the age of 60. Then 2 months later, I was diagnosed with Lupus. I also have Sjogren's syndrome, Fibromyalgia, Arthritis, and...Reactions0reactionsComments6 comments
Still Waiting for My DiagnosisI've been ill for years with joint pain, inflammation and loads of other things... The doctor keeps saying it's just my fibromyalgia. I'm having so many flares at the moment...Reactions0reactionsComments1 comments
Another Lupus Skin Flare?I was diagnosed with Systemic Lupus erythematosus in January this year. Since then I've had better days and worse days. Lately, my skin has been so itchy. When I scratch...Reactions0reactionsComments1 comments
Life with Lupus 22 Years & CountingLiving with life after finding out I had lupus has changed my life for the worse. My family life is not what it used to be, and my husband acts...Reactions0reactionsComments10 comments
15 Years & Still Going StrongAfter being diagnosed in 2008, I spiraled out of control and so did my marriage. My body was fighting against me, and my husband didn't understand me. Spending month after...Reactions0reactionsComments1 comments