Stories

Recently diagnosed with Lupus SLE. My primary doctor, whom I've seen for 8 years was really listening to me. Suddenly I started feeling ALOT more tired than normal. I thought...

Hi, I’m 21, turning 22 this year. For almost all my life, I’ve been in pain but never knew why. It’s like any other lupus story. I can trace symptoms...

I have just been diagnosed in March. Learning how to do everything I can to reduce my flare-ups and reactions is a new journey for me. Every day I experience...

There isn't enough time ever. I found out on my own at requesting certain labwork for Lupus and Sclerodema in 2009. Here we are, 14 years later. No drugs, no...

My daughter was diagnosed with Lupus Retinopathy. It all started when she woke up after a low-grade fever 99.2. She said she saw spots. When she looked at you straight...

Can a disease make you stronger? I started with Fibromyalgia, added Systemic Sclerosis and then Lupus. A few more exotic conditions are thrown in there, just for fun. I've spent...

When I was born, my mother had no idea that I had Lupus; After 3 to 4 Hospital stays for Pneumonia, we continued to search for answers. It was not...

Ever since I can remember I always knew something was off for me. I would frequently get sick and go through strange episodes of different symptoms that would go unexplained...

Hi, I was seven years old when my parents where told I had lupus. I am now sixty years old. I found when was using almost all natural medicine my...

Well, here I am again...wishing I could be telling you all about a miracle that happened and made me all better. Indeed! That is not what I'm reporting. This seemed...

Hi, my name is Jenn and I’m reaching out for help for my family. We are normally not the ones to ask for any help. We always want to be...

It took 4 years to get diagnosed with Lupus, I was told I was depressed and didn't know I was depressed... Even though I had terrible burn blisters all over...

I miss her! The “her” is me, well, the old me. The one that woke up in the morning with a long list of to-dos, a cup of coffee in...

Hello all, I am in Australia and until 2019 lived a healthy and active life. I have had an underactive thyroid for years (15) or more but have never been...

Hi, I was diagnosed with RA last September, then LUPUS last October & am on daily medication (prednisolone, betolvex & Plaquenil) and weekly medication (Methotrexate followed by folic 2xa week)...

Advocates for Lupus are us 4 Sisters here in Louisiana. Once the 3 sisters' biological mother passed at an early age of 30 in late 1965, leaving six kids to...

Hi all, I am going to tell you right away that I am not a USA citizen. I live in Europe, close to Brussels, which is considered it's capital by...

Hi, for many weeks now, I seem to be suffering from something I can only describe as nerve pain at night. This keeps me awake most of the night it...

I wasn’t diagnosed until I was 30, but I have had symptoms since I was 10 yrs old. All the other kids got to go to town to the pool...

Hi sorry to put this, but my feet around my ankle area drives me mad with this rash. It goes up the back of my ankle and on top of...