Since being diagnosed three days before Christmas in 2017, it has been extremely exhausting. It had gotten to the point where it was all I could do to go to work. Luckily I was able to retire just before Covid hit.

Still isn't easy. It takes every bit of energy for me to get anything done. My husband used to complain about me just sitting in my chair. He didn't understand. Unfortunately, he passed away last fall.

Dealing with stress

Stress is a big trigger and with his passing my stress level has been off the charts. I never know when a flare is going to hit sometimes I feel like it's constantly. Aches and pains all over.

I used to love going outside now I avoid the outdoors. I can still go horseback riding as the barn where I ride has an indoor arena. If I want to work in the yard I have to go out early.

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