Last updated: August 2023
I was a first-grade teacher and was diagnosed in 2015. I had all these aches, feeling tired all the time, and I was forgetting everything. I would come home, take a shower, go to bed. That was my life. Luckily I was diagnosed early on. Things got better when I became a school librarian, but the stress and long days still affected me. When I could, I retired. Feeling much better and can nap or be “loopy” (brain fog) with a supportive family.
How are you most likely to respond when someone offers you unsolicited advice about your lupus?