My Skin Is What Got Me TestedI was officially diagnosed with SLE early this past November, although it had been suspected by doctors for about a year. I am 66 years old and have been suffering...Reactions0reactionsComments7 comments
No Support SystemI was diagnosed with lupus in October 2019 and it’s been rough. Every time I try and explain it to a few family members and especially my husband. He thinks...Reactions0reactionsComments10 comments
Still No DiagnosisI have been suffering for many years with lots of symptoms... They keep telling me I have fibromyalgia. I have been seen by a rheumatologist who told me that it...Reactions0reactionsComments1 comments
I Never Thought…I’m a 62-year-old white male. For the last 17 years, I’ve been treated with multiple surgeries on my spine, from my neck to my lumbar. The doctors thought it was...Reactions0reactionsComments3 comments
Multiple Autoimmune ConditionsI was diagnosed with MS in August 2007 at the age of 60. Then 2 months later, I was diagnosed with Lupus. I also have Sjogren's syndrome, Fibromyalgia, Arthritis, and...Reactions0reactionsComments6 comments
Still Waiting for My DiagnosisI've been ill for years with joint pain, inflammation and loads of other things... The doctor keeps saying it's just my fibromyalgia. I'm having so many flares at the moment...Reactions0reactionsComments1 comments
Another Lupus Skin Flare?I was diagnosed with Systemic Lupus erythematosus in January this year. Since then I've had better days and worse days. Lately, my skin has been so itchy. When I scratch...Reactions0reactionsComments1 comments
Life with Lupus 22 Years & CountingLiving with life after finding out I had lupus has changed my life for the worse. My family life is not what it used to be, and my husband acts...Reactions0reactionsComments10 comments
15 Years & Still Going StrongAfter being diagnosed in 2008, I spiraled out of control and so did my marriage. My body was fighting against me, and my husband didn't understand me. Spending month after...Reactions0reactionsComments1 comments
Lupus SucksFirst, they thought I had environmental poisoning. I was finally diagnosed after another 5 years of going to different doctors, just for all of them to say "I don’t know...Reactions0reactionsComments1 comments
Waiting With LupusHi. My is Dannette Johnson Dobey. I have Lupus also. It's been about 9 years now since being diagnosed. It's no joke. Every part of me hurts every day. I...Reactions0reactionsComments4 comments
I Had LupusIn 2017 I was diagnosed with Antiphospholipid Syndrome (APS) and Lupus. As I was reading on the internet (I know they don't like us to do that) I read that...Reactions0reactionsComments1 comments
Twenty-five DoctorsIt took me 15 years and 25 doctors to get diagnosed. I had many erroneous diagnoses along the way, and was thrown out of a Dr office as a hypochondriac...Reactions0reactionsComments2 comments
My Tough YearI was first diagnosed with diabetes in September 2021. Then, in February I was diagnosed with rheumatoid arthritis and Lupus. It's been very tough for me. I was told in...Reactions0reactionsComments4 comments
Not Knowing My True DiagnosisI was diagnosed in February.. it was finally the right diagnosis. After years of pain, headaches, low platelets, joint stiffness, wrist pain and wearing wrist braces for support. I was...Reactions0reactionsComments3 comments
Lyrica Made My Teeth RotIs there anyone else who was on Lyrica even for a short period that ended up with several or all teeth having to be removed?? I was in my late...Reactions0reactionsComments5 comments
Red FaceI had a horrible experience the other evening. My entire face turned red and hot and hurt like hell. I would give my pain a 10. It lasted for hours...Reactions0reactionsComments7 comments
Mother of Eight with LupusMy Mother passed away with lupus, My Grandfather also had lupus. Now I have lupus. I'm glad it skipped my children and grandchildren. I've been diagnosed since 2005 and out...Reactions0reactionsComments1 comments
Cancer Led Me to My Lupus DiagnosisBack in February 2018, I was diagnosed with uterine cancer. I needed to have a complete hysterectomy and go through treatments. During the course of this, I kept telling my...Reactions0reactionsComments1 comments
The TransformationIt was historic...A huge freeze with snow in San Antonio! It didn't last a few hours, like other storms. It came and stayed for days. My friend hadn't seen or...Reactions0reactionsComments6 comments