Lupus SucksFirst, they thought I had environmental poisoning. I was finally diagnosed after another 5 years of going to different doctors, just for all of them to say "I don’t know...Reactions0reactionsComments1 comments
Waiting With LupusHi. My is Dannette Johnson Dobey. I have Lupus also. It's been about 9 years now since being diagnosed. It's no joke. Every part of me hurts every day. I...Reactions0reactionsComments4 comments
I Had LupusIn 2017 I was diagnosed with Antiphospholipid Syndrome (APS) and Lupus. As I was reading on the internet (I know they don't like us to do that) I read that...Reactions0reactionsComments1 comments
Twenty-five DoctorsIt took me 15 years and 25 doctors to get diagnosed. I had many erroneous diagnoses along the way, and was thrown out of a Dr office as a hypochondriac...Reactions0reactionsComments2 comments
My Tough YearI was first diagnosed with diabetes in September 2021. Then, in February I was diagnosed with rheumatoid arthritis and Lupus. It's been very tough for me. I was told in...Reactions0reactionsComments4 comments
Not Knowing My True DiagnosisI was diagnosed in February.. it was finally the right diagnosis. After years of pain, headaches, low platelets, joint stiffness, wrist pain and wearing wrist braces for support. I was...Reactions0reactionsComments3 comments
Lyrica Made My Teeth RotIs there anyone else who was on Lyrica even for a short period that ended up with several or all teeth having to be removed?? I was in my late...Reactions0reactionsComments5 comments
Red FaceI had a horrible experience the other evening. My entire face turned red and hot and hurt like hell. I would give my pain a 10. It lasted for hours...Reactions0reactionsComments7 comments
Mother of Eight with LupusMy Mother passed away with lupus, My Grandfather also had lupus. Now I have lupus. I'm glad it skipped my children and grandchildren. I've been diagnosed since 2005 and out...Reactions0reactionsComments1 comments
Cancer Led Me to My Lupus DiagnosisBack in February 2018, I was diagnosed with uterine cancer. I needed to have a complete hysterectomy and go through treatments. During the course of this, I kept telling my...Reactions0reactionsComments1 comments
The TransformationIt was historic...A huge freeze with snow in San Antonio! It didn't last a few hours, like other storms. It came and stayed for days. My friend hadn't seen or...Reactions0reactionsComments6 comments
Thomas the Train & Lupus the PainEvery day I tell myself "I think I can." I am now 62 and was diagnosed with lupus 28 years ago. I've seen on here a number of stories from...Reactions0reactionsComments4 comments
The Sun, Lupus and MeI loved being outside soaking up the sun. Feeling the warmth go through my body. I was very young when I was diagnosed with Lupus. I was 8. It has...Reactions0reactionsComments8 comments
Journey to the UnknownI was at work and thought I was having a heart attack. I went to Doctor's Care and they called for an ambulance b/c of my EKG readings. I was...Reactions0reactionsComments1 comments
The Long HaulI am now 68 years old and have suffered through Lupus for 20 years. Thankfully I was able to find a wonderful rheumatologist. When my insurance changed I changed my...Reactions0reactionsComments2 comments
Jen's LifeWell, the more I read I wonder how long I have really had lupus... Back in the day I had 3 stillborn babies. Fast forward, I was diagnosed with fibromyalgia...Reactions0reactionsComments3 comments
My Lupus JourneyI was diagnosed with lupus in 1997 I am now 65 yrs old. Through the years I could cope very well with my condition. I held a job very well...Reactions0reactionsComments1 comments
My Eyes Are Open Now!I have been a very healthy person until 5 years ago. I began to think my doctor just got tired of hearing the same old whining from me. Just within...Reactions0reactionsComments8 comments
Flawed with Lupus💜I was diagnosed almost five years ago. My life changed slowly but surely. I had chronic infections, unexplained body pain, and abnormal labs. After my Lupus diagnosis, my treatments were...Reactions0reactionsComments2 comments
Beauty In LightIt’s just so nice to finally not be told by doctors I am making up all of these symptoms. After years of being dismissed and not taken seriously, I am...Reactions0reactionsComments2 comments