Managing with Lupus
Last updated: June 2023
After living with Lupus symptoms for years and being diagnosed 2 years ago.
Lessons I have learned with lupus
I have learned to get at least 10 hours of sleep per night. I take my hydroxychloroquine daily. I refrain from being in the sun directly at its peak hours and always use 70-level sunscreen and wear a hat and apply the sunscreen 30 min before I go out. I do my gardening and lawn work in the early evening. I try to minimize stress. I contribute to the Lupus site and online support groups and appreciate others' experiences.
Coping with change
Lupus has changed my life. I have had to limit my social activities and rest when I need to. I have lost some friends who do not understand when I have to cancel plans. I pray daily and read inspirational books and books about lupus and other immune disorders. I cherish the good days and try to deal with the bad, hard days as best as I can and give myself permission to rest and know that this shall pass -the flare will recede. My inability to keep up with my housework is VERY evident but those that love me understand.
How are you most likely to respond when someone offers you unsolicited advice about your lupus?