Stories

I've had Lupus since 1989. I lost a baby because of it. That's when I found out I had Lupus. I've had quite a few flares. In 2020, I had...

It's been 26 years since I was first told I might have lupus, and I still don't have a definite diagnosis. Because I have periods where I am fine, people...

I was diagnosed in 1998, but managed well and had few flares. As time has gone on, it has gotten worse. It took my nursing job, my mobility (in a...

I was diagnosed in 1994, the same year I graduated from nursing school. I have been living with multi-system involvement- most recently the death of my right kidney and more...

I am a mom to 7 humans. Three that are under 13 years old. One has Down syndrome. He has the mind of a 3-year-old, is non-verbal, and is very...

I was adopted at 3 days old. My adoptive mother never told me any information and was quite touchy about the subject. I'm now 54 with children and grandchildren and...

I was officially diagnosed only about a year ago. My Mother-RIP-also suffered & lost her battle with this devastating disease. I believe I have been suffering for Lupus for many...

I have developed a system to help my family understand how I am doing each day. I have the traditional 1-10 pain scale, but a physician's assistant I used to...

I was diagnosed when I was 24, at the time my daughters were 3 and 5. I didn't know what was wrong. I went to doctor after doctor trying to...

I was diagnosed with Lupus when I was 21. I had a grand mal seizure and thought it was epilepsy. I didn't know entirely how the disease affected the body...

Just read about the Glandular fever virus connection, I had it at 14, that's 50 years ago. It's incredible isn't it, I directly asked my Rheumatologist (who also now claims...

Lupus, what have you taught me? You've taught me compassion, not to judge anyone, that many suffer in silence - behind a smile while inside they are dying. That the...

After living with Lupus symptoms for years and being diagnosed 2 years ago. I have learned to get at least 10 hours of sleep per night. I take my hydroxychloroquine...

Last year, I decided to make an appointment with the neurologist due to having more than usual nerve pain, especially in my feet and both hands and arms. But the...

22 years ago I finally got my diagnosis but for over 25 years I had experienced symptoms. I had been dismissed by so many doctors. I began to think it...

I was diagnosed with SLE about 6 years ago. I didn't think anything of it because I was never educated by my doctors about what was actually going on in...

I was diagnosed with Lupus in 2014. To say it was a game-changer is putting it mildly. I'm glad I found out later in life, or I would really be...

I was practicing some self-care last summer when I started sweating and felt out of breath and passed out in the spa chair of the nail shop. I woke up...

My name is Amanda, I am 36 years old and this is my story. I had my first autoimmune disorder at the age of 18 months old, I started with...

About 6 years ago I went to my GP with a rash across my neck and other ongoing symptoms. He asked me what I did for a job and when...