Lupus Changed How I Saw MyselfI was diagnosed with Lupus when I was 21. I had a grand mal seizure and thought it was epilepsy. I didn't know entirely how the disease affected the body... By Deelausanboy21 min readBookmark for laterReactions 0 reactions Comments7 comments
Missed ChancesJust read about the Glandular fever virus connection, I had it at 14, that's 50 years ago. It's incredible isn't it, I directly asked my Rheumatologist (who also now claims... By Lupause1 min readBookmark for laterReactions 0 reactions Comments2 comments
What Lupus Has Taught MeLupus, what have you taught me? You've taught me compassion, not to judge anyone, that many suffer in silence - behind a smile while inside they are dying. That the... By LolaBeans134 min readBookmark for laterReactions 0 reactions Comments2 comments
Managing with LupusAfter living with Lupus symptoms for years and being diagnosed 2 years ago. I have learned to get at least 10 hours of sleep per night. I take my hydroxychloroquine... By Arlene1 min readBookmark for laterReactions 0 reactions Comments3 comments
My Diagnosis Was an Unexpected SurpriseLast year, I decided to make an appointment with the neurologist due to having more than usual nerve pain, especially in my feet and both hands and arms. But the... By Lil Mama 472 min readBookmark for laterReactions 0 reactions Comments1 comments
22 Years and Still Counting...22 years ago I finally got my diagnosis but for over 25 years I had experienced symptoms. I had been dismissed by so many doctors. I began to think it... By momof21 min readBookmark for laterReactions 0 reactions Comments3 comments
LupiesI was diagnosed with SLE about 6 years ago. I didn't think anything of it because I was never educated by my doctors about what was actually going on in... By msulli1 min readBookmark for laterReactions 0 reactions Comments1 comments
This Lupie LifeI was diagnosed with Lupus in 2014. To say it was a game-changer is putting it mildly. I'm glad I found out later in life, or I would really be... By Nutrishalife1 min readBookmark for laterReactions 0 reactions Comments3 comments
Becoming a Lupus WarriorI was practicing some self-care last summer when I started sweating and felt out of breath and passed out in the spa chair of the nail shop. I woke up... By Scorpiowoman142 min readBookmark for laterReactions 0 reactions Comments0 comments
My Lupus ExperienceMy name is Amanda, I am 36 years old and this is my story. I had my first autoimmune disorder at the age of 18 months old, I started with... By AmandaW1 min readBookmark for laterReactions 0 reactions Comments0 comments
So I'm Not a Hypochondriac...About 6 years ago I went to my GP with a rash across my neck and other ongoing symptoms. He asked me what I did for a job and when... By Wildgardentherapy1 min readBookmark for laterReactions 0 reactions Comments0 comments
Showing Lupus Who the Boss IsI was in my early 30's when I was diagnosed. I'm married, I was raising 2 small boys and the doctor told me I had 5 years to live. After... By CommunityMember2171 min readBookmark for laterReactions 0 reactions Comments0 comments
Lupie LifeI've had Lupus since I was 8 and now I'm 47. I've been in and out of hospitals. I'm so blessed I was able to have one child. I have... By Michelle991 min readBookmark for laterReactions 0 reactions Comments0 comments
Me, Myself & LupusHi, my name is Sandy. I have been diagnosed with lupus going on almost 4 years now. Let me tell you, at 1st I was angry & disappointed with the... By MsSandy761 min readBookmark for laterReactions 0 reactions Comments1 comments
Becoming a WarriorFor at least three years, I had been experiencing the strangest sensations – like my nerves were on fire and my joints were so inflamed that my hands would sometimes... By phylisebanner1 min readBookmark for laterReactions 0 reactions Comments3 comments
I Have Lupus. Lupus Doesn't Have Me.In 1996 my freshman year of college I was given the word Lupus to title all the rashes aches pains hair loss fatigue. I had no place to put this... By Polymerqueen3 min readBookmark for laterReactions 0 reactions Comments1 comments
Lupus Changed My Life... For Good!Surprisingly, being diagnosed with lupus (and fibromyalgia) in my early 30s changed my life and opened the world. It created a pathway to find more joy in my life and... By BurBunny1 min readBookmark for laterReactions 0 reactions Comments0 comments
Lupus warriorMy name is Kendra and I got lupus when I was 11 years old I am in remission now but still have my ups and downs but I fight it... By Lupusworror911 min readBookmark for laterReactions 0 reactions Comments0 comments
Smoldering Myeloma, MGUS and LupusI've had SLE lupus since 1999 and received the news that I have MGUS (monoclonal gammopathy of undetermined significance) on 6/6/2017. When I read your feature story, I was glad... By thie1 min readBookmark for laterReactions 0 reactions Comments1 comments
Poem: "Lupus Is Not a Disease That You See"Lupus is not a disease that you see. It reminds you it’s there like an ‘invisible enemy'. It ravages your body in ways you can never explain. A winding river... By Nuthinbutlove1 min readBookmark for laterReactions 0 reactions Comments12 comments