Giving My AllI was found out I had Lupus Nephritis in 2015. Since then I have had my ups and downs. This year has been my worst, or maybe I am just... By MissMel1 min readBookmark for laterReactions 0 reactions Comments1 comments
Blindsided by Lupus and Autoimmune DiseasesI was diagnosed with SLE Lupus 15 years ago. Since then, I have been diagnosed with Fibromyalgia, Sjogrens, Raynauds and this past November, tests showed my Thyroid is having problems... By Ejohnson681 min readBookmark for laterReactions 0 reactions Comments6 comments
My Humbling MomentMarch 2020 was the last time I worked as a critical care nurse. Covid came knocking on our doors. Because of my age, 72, my nursing director felt I should... By CJRuns1 min readBookmark for laterReactions 0 reactions Comments4 comments
Always Hopeful2015, the year Discoid Lupus and Subacute Cutaneous Lupus covered my torso and arms in lesions, many of which got infected. The same year, Rheumatoid Arthritis struck. The latter wasn’t... By Darene572 min readBookmark for laterReactions 0 reactions Comments1 comments
Taking Charge of My Tangled Web of SymptomsAfter having three babies in three years, I was exhausted. Physically, I’d been through a lot of changes, and emotionally, it was a lot of change for me. I was... By Jordana3 min readBookmark for laterReactions 0 reactions Comments6 comments
DiagnosisI was diagnosed 28 years ago when I gave birth to my youngest child. After I had her I felt off. I couldn’t lift a brush to brush my hair... By BonnieMignot1 min readBookmark for laterReactions 0 reactions Comments3 comments
Lupus Nephritis: Now On DialysisI've had Lupus since 2005. It went into my kidneys and now I'm on dialysis. Soon I'll be looking for a Kidney Transplant. I have potential donors, the problem is... By PinkPartridge1 min readBookmark for laterReactions 0 reactions Comments3 comments
Life with Lupus and RAI just joined Lupus.net today. I actually have both Lupus and RA. I have had RA since 2004 and had to retire from nursing in 2017, as RA started really... By chestnc1 min readBookmark for laterReactions 0 reactions Comments1 comments
Lupus Symptoms WorseningI essentially have had lupus for 42 years. I was 30, pregnant with my youngest daughter when they first questioned systemic lupus due to 2 daughters born 10 weeks early... By illmom19471 min readBookmark for laterReactions 0 reactions Comments1 comments
A B-3 vitamin variantI joined this forum because of the benefits of taking a variant in the B-3 vitamin group that my friend had a good experience with. The vitamin is "nicotinamide riboside... By JMG11 min readBookmark for laterReactions 0 reactions Comments4 comments
Starting Lupkynis and Seeking SupportAfter a 22+ year military career, retiring in 2003, I started having issues just a couple of years later. Pain throughout my body, feeling tired, and just unable to do... By EdCaffreyMS2 min readBookmark for laterReactions 0 reactions Comments1 comments
If Only I KnewAfter reading this story on hysterectomy and menopause...I realized now how lupus affected my uterus and I nearly lost my son back in 1984. I was told not to get... By tinaj2 min readBookmark for laterReactions 0 reactions Comments3 comments
Return of the LupusAfter suffering through extreme fatigue for many years, being told I was lazy, believing I was lazy, being diagnosed with pleurisy, migrating joint pain, 100 other issues and lastly, being... By AlysonP1 min readBookmark for laterReactions 0 reactions Comments7 comments
Male Living with LupusMy health issues began around 1990. Migraines sent me to a doctor first, then I would return to him as other things would start giving me troubles. After doing this... By Eric1 min readBookmark for laterReactions 0 reactions Comments1 comments
Finding Community When You Don't "Look Sick"Hi, I'm new here. Nice to be in a group that can relate to all our symptoms! It started 1 year ago with dry mouth and shortness of breath. I... By Jrwight1 min readBookmark for laterReactions 0 reactions Comments4 comments
Unexplained Pain, Fatigue and Mouth UlcersI can't say for sure when my lupus started. Personally, I think it was several years ago, but according to the doctors and my bloodwork, it was brought on by... By dickinson13 min readBookmark for laterReactions 0 reactions Comments3 comments
My Blood Work Looks Good. So Why Am I Struggling?I was off Benlysta infusions for a couple of months for medical reasons. My lupus went crazy! I am back on the infusions and with blood work being taken my... By Jhansen661 min readBookmark for laterReactions 0 reactions Comments1 comments
Years of Living Silently with Lupus SymptomsI am 65 years old. I have had minor issues throughout my life, but always chalked them up to other things. In 2018 I developed a pulmonary embolism out of... By catmagick1 min readBookmark for laterReactions 0 reactions Comments2 comments
When a Hug HurtsFirst I also have statue disease, when I was a child back in the day. My rash was treated (by Granny) with corn starch. You didn't see a doctor unless... By Stacey1 min readBookmark for laterReactions 0 reactions Comments1 comments
I'm Glad I Have Lupus!I remember the first time I ever heard/read the word Lupus. Me and my ex-wife had just endured our 4th miscarriage and we were looking for answers. We found a... By rrobison253 min readBookmark for laterReactions 0 reactions Comments1 comments