Stories

March 2020 was the last time I worked as a critical care nurse. Covid came knocking on our doors. Because of my age, 72, my nursing director felt I should...

2015, the year Discoid Lupus and Subacute Cutaneous Lupus covered my torso and arms in lesions, many of which got infected. The same year, Rheumatoid Arthritis struck. The latter wasn’t...

After having three babies in three years, I was exhausted. Physically, I’d been through a lot of changes, and emotionally, it was a lot of change for me. I was...

I was diagnosed 28 years ago when I gave birth to my youngest child. After I had her I felt off. I couldn’t lift a brush to brush my hair...

I've had Lupus since 2005. It went into my kidneys and now I'm on dialysis. Soon I'll be looking for a Kidney Transplant. I have potential donors, the problem is...

I just joined Lupus.net today. I actually have both Lupus and RA. I have had RA since 2004 and had to retire from nursing in 2017, as RA started really...

I essentially have had lupus for 42 years. I was 30, pregnant with my youngest daughter when they first questioned systemic lupus due to 2 daughters born 10 weeks early...

I joined this forum because of the benefits of taking a variant in the B-3 vitamin group that my friend had a good experience with. The vitamin is "nicotinamide riboside...

After a 22+ year military career, retiring in 2003, I started having issues just a couple of years later. Pain throughout my body, feeling tired, and just unable to do...

After reading this story on hysterectomy and menopause...I realized now how lupus affected my uterus and I nearly lost my son back in 1984. I was told not to get...

After suffering through extreme fatigue for many years, being told I was lazy, believing I was lazy, being diagnosed with pleurisy, migrating joint pain, 100 other issues and lastly, being...

My health issues began around 1990. Migraines sent me to a doctor first, then I would return to him as other things would start giving me troubles. After doing this...

Hi, I'm new here. Nice to be in a group that can relate to all our symptoms! It started 1 year ago with dry mouth and shortness of breath. I...

I can't say for sure when my lupus started. Personally, I think it was several years ago, but according to the doctors and my bloodwork, it was brought on by...

I was off Benlysta infusions for a couple of months for medical reasons. My lupus went crazy! I am back on the infusions and with blood work being taken my...

I am 65 years old. I have had minor issues throughout my life, but always chalked them up to other things. In 2018 I developed a pulmonary embolism out of...

First I also have statue disease, when I was a child back in the day. My rash was treated (by Granny) with corn starch. You didn't see a doctor unless...

I remember the first time I ever heard/read the word Lupus. Me and my ex-wife had just endured our 4th miscarriage and we were looking for answers. We found a...

1 year ago something changed my life forever. I woke up having severe pain in my back. I have a spinal fusion due to scoliosis, so I thought maybe I...

I was diagnosed in 1979 after about 6 months of unexplained symptoms and am grateful to have had a family doctor who was an incredible diagnostician. Some of my friends...