I had a horrible experience the other evening.
My night of pain
My entire face turned red and hot and hurt like hell. I would give my pain a 10. It lasted for hours. I put cold on my face and eventually fell asleep. In the morning I called my doctor and she said it wasn’t my lupus. She did order a prednisone pack... She said if it happens again go to the emergency room.
Has anyone else ever had that happen?
Have you written a letter to your local congress representative to advocate for lupus research and education funding this year?