Missed Chances

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1. 

   Ava Meena Moderator

   <p>Thank you very much for sharing your story, as tough as it&#39;s been. I had to look up Hughes syndrome - I have always heard it called antiphospholipid syndrome (APS), so I learned something new. I was checked for APS during my first pregnancy because people with lupus have a higher risk of having it. (In case anyone else reading want to learn more, here&#39;s an article on APS: <a href='https://lupus.net/aps' target='_blank' rel='noopener noreferrer ugc'>https://lupus.net/aps</a> ) <br/><br/><br/>I&#39;m so sorry you were dismissed by your doctor. I&#39;m glad you found validation on this site from the article about glandular fever. It&#39;s a shame your doctor doesn&#39;t know of the connection, especially since many medical sites list any bad experience with a virus as being a potential trigger for lupus. Again, thanks for sharing. Wishing you the best. -Ava, lupus.net team</p>

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2. 

   Lupause

   <p>Hi Ava, thanks for Your response. If my medical history can trigger anyone to investigate their own condition to find a resolution then I am more than happy to help. Antiphospholipid syndrome (APS) is also mentioned on letters from one set of my consultants &#39;the hematologists&#39;, I get very mixed messages from all but my stroke consultants. I am now in reasonable heath due to the life long medications.<br/>I am now referred to as a &quot;stroke survivor &quot; and am left mainly with memory lost and an inability to multi task. I should be grateful that I&#39;m here to tell the tale but the nagging doubts of what had been missed many years earlier, that could have saved a lot more of me, still linger, that is why I would push anyone to pursue their symptoms fully.<br/>Any teenager who develops glandular fever (Epstein-Barr Virus) should get checked after the virus has appeared to subsided, it could save them from a very uncertain future.<br/>Take care</p>

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