Nerve Pain

By Cazmarglom

Last Updated:

1 min read

Hi, for many weeks now, I seem to be suffering from something I can only describe as nerve pain at night. This keeps me awake most of the night it goes all over my body in waves, a bit like electric shocks ..in my legs, head, arms, feet and most recently, my stomach ... It's not a nice feeling, along with constant itching I never sleep.x

Has anyone else experienced something similar?

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Racquel H. Dozier Member

<inline-mention username="Cazmarglom" user-id="6620835"/> yes definitely have experienced it. There is a new article about neuropathy https://lupus.net/living/neuropathy This may help to explain some. Define ask your doctor their thoughts as well to make sure it isn't something else like fibromyalgia. Hope this helps some know you are not alone. ~Racquel~ <a href='https://lupus.net' target='_blank'>lupus.net</a> team member
Cazmarglom Member

Thank you for your comments.x
Julie_Therese Member

Oh yes, I have been going through this for the past week. Electric shock/knives coursing through my calves, feet, wrists, hands. I have had that together with skin pain (allodynia) and now feel like I have the flu (probably from not sleeping well at all because of the little shockers at night). Today I have zappers in my left ear. I also get little itches that are definitely nerve related. It is not fun!
1. GabbyFormica Community Admin
 
 <inline-mention username="Julie_Therese" user-id="6882332"/>, Not fun at all! Neuropathy is no joke and can be complicated to treat. So many people describe lupus pain as feeling like they are walking around with the flu all year long. We hear you. I hope there is some comfort in knowing that you are not alone. Gabby (team member)
CommunityMember0357fc Member

I have constant nerves pain through whole body. Feels like a low electric current. Always seems worse at bedtime. At night it goes in waves over my back. I thought I was going crazy. It took 3 neurologist before I found one that said it happens with Lupus. I'm now on lyrica and it decreases it so it's manageable. 
1. Erin Rush Community Admin
 
 <inline-mention username="CommunityMember0357fc" user-id="8768013"/>, nerve pain can be some of the most insidious and difficult to treat, so I am glad the Lyrica is working for you. I know it doesn't take away all the pain, but I am glad its reduced to manageable levels. I am glad you kept advocating for yourself and your health, even if it took 3 neurologists to do so! Best, Erin, Team Member.