Tell us about your experiences with weight management. Take our survey!

My Lupus Story

It took 29 years to definitely be diagnosed with systemic lupus. I was nearly 31, (1979) when I was pregnant with my second daughter.

Lupus and pregnancy

Lupus was questioned due to toxemia again. First pregnancy (1975) with daughter one, I had toxemia at 30 weeks. Kim was 2 pounds and 14 ounces. I lost a baby in 1978. Due to being diagnosed so late, the systemic lupus affected my heart, lungs, and neurological systems.

Lupus flares

My flares occur monthly, and include: shortness of breath, migraines, exhaustion, as well as pleuritic pain. Some days are better than others. I tried Plaquenil. After 10 years, it became ineffective.

Lupus treatments

In 2022 I tried Imuran, but that never helped. I go on monthly prednisone tapers. However, when I get down to 30mg, the flares start up again.

I see my rheumatologist every 8-12 weeks. Many meds he could put me on have had more dangerous side effects than the lupus itself, so he won't prescribe them. I take life one day at a time.

By providing your email address, you are agreeing to our Privacy Policy and Terms of Use.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Lupus.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.