My Daughters Diagnosis

My daughter was diagnosed with Lupus Retinopathy. It all started when she woke up after a low-grade fever 99.2. She said she saw spots. When she looked at you straight on it was a black dot. Her peripheral vision was fine.

A revolving door of doctors

We went from the primary care doctor, to the eye doctor, to the ophthalmologist, then to a retinal specialist who was the actually the one to diagnose her. We even had to see a rheumatologist that took 11 vials of blood, the results were perfect across the board. We go back to the retinal specialist, and he said had you seen me after your bloodwork I would have said it was in your head. He said "but I know what I saw."

By providing your email address, you are agreeing to our Privacy Policy and Terms of Use.

Lupus Retinopathy

As of that day, there is only 6 cases of Lupus Retinopathy researched in the last 15 yrs. He did not put her on anything because he didn’t believe anything would work but time. Her eyes are stable now, he told us she may have a flare up again. It could be somewhere else or another symptom. She played basketball and now that I think back her recovery time took longer than normal. She is now 19 and a healthy kid. We just take it one day at a time. Look up this diagnosis, see how much info you can find.

Joanna McCleery

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Lupus.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.