My Diagnosis Story

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1. 

   Ava Meena Moderator & Contributor

   <p>I&#39;m so grateful you found this community shortly after your diagnosis. It&#39;s not a path that any of us want to be on, but education and community help so much when it comes to dealing with lupus. I also have Sjogren&#39;s and I&#39;ve had a tough time dealing with it.<br/><br/><br/>Thank you for sharing your positivity and encouraging words. I also wish to encourage you because the early days of disease and diagnosis can be so tough. I spent most of my time in bed as well (and I still do spend far more time resting than other people). But hopefully you can start treatments and, while they may take anywhere from 3 months to a year to kick in, the right treatment regimen can improve things greatly.<br/><br> Thank you for sharing your story with us. Wishing you the best. -Ava, <a href='https://lupus.net' target='_blank'>lupus.net</a> team</p>

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2. 

   CommunityMembereb625d Member

   <p>I was also diagnosed with Sjogren’s along with the fibromyalgia and Lupus. Flairs are frequent and I make myself get out my bed and do something if only to move around my bedroom picking up. I frequent our local Y a couple days a week whenever I’m not down with a flair. This year I’ve had more flairs than usual so my trips to the Y have been limited, but I make myself get outta bed. I can’t let this disease win, so far I have Fibromyalgia, Lupus and Sjogren’s and other chronic symptoms including being diagnosed with Breast Cancer “But Still I Rise”, Maya Angelou. My sister was diagnosed the same time I was diagnosed, she walks every day.</p>

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   1. 

      Doreen H Community Admin

      <p><inline-mention username="CommunityMembereb625d" user-id="6638471"/> <br/>Thank you for sharing your story and wonderful perspective.<br/>I will be keeping you and your sister in my thoughts. <br/>~Doreen (Team Member)</p>

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